Health beliefs among African American women regarding genetic testing and counseling for sickle cell disease
Health beliefs among African American women regarding genetic testing and counseling for sickle cell disease
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DOI：
10.1097/gim.0b013e3180534282
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发表时间：
2007-05-01
影响因子：
8.8
通讯作者：
Krishnamurti, Lakshmanan
中科院分区：
文献类型：
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作者：
Gustafson, Shanna L.;Gettig, Elizabeth A.;Krishnamurti, Lakshmanan
目的：健康信念模型可以帮助理解疾病预防和筛查的低接受度。我们研究了非洲裔美国妇女的健康信念，以确定尽管该人群中镰状细胞病和杂合子的患病率很高，但对基因检测和咨询的接受度较低的原因。方法：对101名在妇产科就诊的非裔美国妇女进行匿名问卷调查，采用5分李克特量表（Likert scale），共12个问题，以确定她们对镰状细胞病的认识、对风险的认知、严重程度、获益的可能性和咨询的障碍。结果：在5分Likert量表上，镰状细胞病严重程度的累积平均感知得分为4.22 +/- 0.88，基因检测益处为4.10 +/- 1.03，检测障碍为2.28 +/- 1.00，生下患有镰状细胞病的孩子的风险为2.62 +/- 1.06。较高的平均知识水平与较高的严重程度和筛查获益感相关（P < 0.05）。结论：非裔美国妇女对镰状细胞病的严重程度和遗传咨询的益处有相对较高的信念，但通常似乎不相信她们生下的孩子有患病的风险。在设计教育和咨询战略时应考虑到这一点。
Purpose: The Health Belief Model can help in understanding low acceptance of disease prevention and screening. We studied health beliefs of African American women to determine causes of low acceptance of genetic testing and counseling despite high prevalence of sickle cell disease and heterozygotes in this population. Methods: An anonymous questionnaire using a 12-question measure with a 5-point Likert scale response was administered to 101 African American women attending an obstetrics and gynecology clinic to determine knowledge of sickle cell disease, perception of risk, severity, likelihood of benefit and barriers to counseling. Results: The cumulative mean perceived scores on the 5-point Likert scale were 4.22 +/- 0.88 for severity of sickle cell disease, 4.10 +/- 1.03 for benefit of genetic testing, 2.28 +/- 1.00 for barriers to testing, and 2.62 +/- 1.06 for risk of having a child with sickle cell disease. High average level knowledge was associated with high perception of severity and benefit to screening (P < 0.05). Conclusion: African American women have a relatively high belief of the severity of sickle cell disease and benefits of genetic counseling but frequently do not appear to believe that they are at risk of having a child with the disease. This should be taken into account in the design of educational and counseling strategies.