Living with coeliac disease: survey results from the USA
Living with coeliac disease: survey results from the USA
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DOI：
10.1111/j.1365-277x.2012.01236.x
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发表时间：
2012-06-01
影响因子：
3.3
通讯作者：
Green, P. H. R.
中科院分区：
文献类型：
--
作者：
Lee, A. R.;Ng, D. L.;Green, P. H. R.
如何引用这篇文章：李A.R.，Ng D.L.，钻石B，Ciaccio E.J. &绿色P.H.R.（2012）生活与腹腔疾病：来自美国的调查结果。J Nutr Diet. 25，233238摘要背景：腹腔疾病的唯一治疗方法是终身坚持严格的无麸质饮食。本研究旨在评估乳糜泻对美国个人日常生活社会方面的影响。研究方法：本研究采用自我管理的调查，包括标准的生活质量问卷（12项简表）与验证疾病特异性问题。使用sas统计软件2010（SAS Institute，卡里，NC，USA）计算平均值（SD）。结果：总体而言，乳糜泻患者的积极健康感知较低。经验证的饮食和疾病特异性问题显示，社会环境对生活质量有显著的负面影响。具体而言，旅行、外出就餐和家庭生活领域受到的影响最大。饮食的负面影响随着时间的推移显着下降，虽然它没有解决外出就餐和旅行的领域。那些在儿童时期被诊断出来并保持饮食的人对成年后的生活质量影响较小。结论：美国乳糜泻患者的生活质量下降，特别是在生活的社会方面。
How to cite this article: Lee A.R., Ng D.L., Diamond B., Ciaccio E.J. & Green P.H.R. (2012) Living with coeliac disease: survey results from the USA. J Hum Nutr Diet. 25, 233238 Abstract Background: The only treatment for coeliac disease is lifelong adherence to a rigorous gluten-free diet. The present study aimed to evaluate the influence of coeliac disease on the social aspects of daily life of individuals in the USA. Methods: The present study used a self-administered survey including the standard Quality of Life questionnaire (12-item short-form) with validated disease-specific questions. sas statistical software 2010 (SAS Institute, Cary, NC, USA) was used to calculate the mean (SD). Results: Individuals with coeliac disease overall had a low positive health perception. Validated diet and disease-specific questions revealed a significant negative impact on quality of life in social settings. Specifically, the areas of travel, dining out and family life are most affected. The negative impact of diet significantly decreased over time, although it did not resolve for the domains of dining out of the home and travel. Those diagnosed in childhood and maintained on the diet had less of an impact on the quality of life as an adult. Conclusions: Individuals with coeliac disease in the USA have a diminished quality of life, especially in the social aspects of life.