Patient and public views on electronic health records and their uses in the United kingdom: cross-sectional survey.
Patient and public views on electronic health records and their uses in the United kingdom: cross-sectional survey.
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DOI：
10.2196/jmir.2701
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发表时间：
2013-08-23
影响因子：
7.4
通讯作者：
Bell D
中科院分区：
文献类型：
--
作者：
Luchenski SA;Reed JE;Marston C;Papoutsi C;Majeed A;Bell D
电子健康记录（EHR）的开发和实施仍然是一项国际挑战。需要更好地了解患者和公众的态度以及影响对EHR支持的总体水平的因素，以制定政策。探讨病人和公众对综合电子健康记录同时用于卫生保健提供，规划和政策，卫生研究的态度。对患者和公众进行横断面问卷调查，这些患者和公众是从伦敦（英国）一家主要教学医院的8家门诊和8家全科诊所的分层整群随机样本中招募的。5331名患者和公众参与了调查，其中2857人提供了完整的数据。有适度的高水平的支持，同时用于医疗保健提供，规划和政策，健康研究（1785/2857，62.47%），而27.93%（798/2857）的参与者报告说，不确定他们是否会支持电子健康记录的使用。对电子健康记录的具体用途的支持程度较高。大多数参与者赞成EHR提供个人医疗保健服务（2563/2857，89.71%），66.75%（1907/2857）表示他们更喜欢完整而不是有限的病史。在那些对综合EHR“未决定”的人中，87.2%（696/798）仍然赞成出于健康提供目的共享其完整（373/798，46.7%）或有限（323/798，40.5%）记录。虽然59.75%（1707/2857）和67.10%（1917/2857）的受访者分别希望删除他们的个人标识符，但在卫生服务政策和规划（2274/2857，79.59%）和研究（2325/2857，81.38%）中使用电子健康记录的支持率也同样高。多变量分析显示，EHR的整体支持水平随着年龄的增长而下降。自认为是英国黑人的受访者更有可能报告尚未决定或不支持国家EHR。经常使用卫生服务者更有可能报告支持而不是犹豫不决。尽管国家卫生服务（NHS）的技术项目以前的困难，病人和公众普遍支持的综合EHR的医疗保健提供，规划和政策，健康研究的发展。然而，这种支持因社会群体而异，并不是无条件的;必须有相关的保障措施，患者在决策过程中应得到指导，包括提高对电子健康记录二次使用益处的认识。
The development and implementation of electronic health records (EHRs) remains an international challenge. Better understanding of patient and public attitudes and the factors that influence overall levels of support toward EHRs is needed to inform policy. To explore patient and public attitudes toward integrated EHRs used simultaneously for health care provision, planning and policy, and health research. Cross-sectional questionnaire survey administered to patients and members of the public who were recruited from a stratified cluster random sample of 8 outpatient clinics of a major teaching hospital and 8 general practices in London (United Kingdom). 5331 patients and members of the public responded to the survey, with 2857 providing complete data for the analysis presented here. There were moderately high levels of support for integrated EHRs used simultaneously for health care provision, planning and policy, and health research (1785/2857, 62.47%), while 27.93% (798/2857) of participants reported being undecided about whether or not they would support EHR use. There were higher levels of support for specific uses of EHRs. Most participants were in favor of EHRs for personal health care provision (2563/2857, 89.71%), with 66.75% (1907/2857) stating that they would prefer their complete, rather than limited, medical history to be included. Of those “undecided” about integrated EHRs, 87.2% (696/798) were nevertheless in favor of sharing their full (373/798, 46.7%) or limited (323/798, 40.5%) records for health provision purposes. There were similar high levels of support for use of EHRs in health services policy and planning (2274/2857, 79.59%) and research (2325/2857, 81.38%), although 59.75% (1707/2857) and 67.10% (1917/2857) of respondents respectively would prefer their personal identifiers to be removed. Multivariable analysis showed levels of overall support for EHRs decreasing with age. Respondents self-identifying as Black British were more likely to report being undecided or unsupportive of national EHRs. Frequent health services users were more likely to report being supportive than undecided. Despite previous difficulties with National Health Service (NHS) technology projects, patients and the public generally support the development of integrated EHRs for health care provision, planning and policy, and health research. This support, however, varies between social groups and is not unqualified; relevant safeguards must be in place and patients should be guided in their decision-making process, including increased awareness about the benefits of EHRs for secondary uses.
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DOI：
10.1136/bmj.d6054
发表时间：
2011-10-17
期刊：
BMJ (Clinical research ed.)
影响因子：
--
作者：
Sheikh A;Cornford T;Barber N;Avery A;Takian A;Lichtner V;Petrakaki D;Crowe S;Marsden K;Robertson A;Morrison Z;Klecun E;Prescott R;Quinn C;Jani Y;Ficociello M;Voutsina K;Paton J;Fernando B;Jacklin A;Cresswell K
通讯作者：
Cresswell K
影响因子：
9.3
作者：
McGinn CA;Grenier S;Duplantie J;Shaw N;Sicotte C;Mathieu L;Leduc Y;Légaré F;Gagnon MP
通讯作者：
Gagnon MP
影响因子：
3.5
作者：
Luchenski S;Balasanthiran A;Marston C;Sasaki K;Majeed A;Bell D;Reed JE
通讯作者：
Reed JE
影响因子：
--
作者：
Corbie-Smith, G;Thomas, SB;St George, DMM
通讯作者：
St George, DMM
影响因子：
2.7
作者：
Willison DJ;Swinton M;Schwartz L;Abelson J;Charles C;Northrup D;Cheng J;Thabane L
通讯作者：
Thabane L