Conceptions of Legacy Among People Making Treatment Choices for Serious Illness: Protocol for a Scoping Review.
Conceptions of Legacy Among People Making Treatment Choices for Serious Illness: Protocol for a Scoping Review.
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DOI：
10.2196/40791
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发表时间：
2022-12-09
影响因子：
1.7
通讯作者：
Henrikson, Nora B
中科院分区：
文献类型：
--
作者：
Figueroa Gray, Marlaine;Banegas, Matthew P;Henrikson, Nora B
遗产——一个人留下了什么，以及一个人希望在死后如何被人记住——是面临严重疾病的人做出决策时尚未探索的重要方面。一项初步的文献综述表明，面临严重疾病的患者在做出医疗决定时考虑遗产，例如，放弃临床疗效有限或未知的昂贵治疗，以为子女保留遗产。迄今为止，对遗产的概念基础所知甚少。目前还没有一个概念性的框架能够全面地理解遗赠因素与患者选择医疗护理之间的关系。本综述的目的是了解研究的范围和类型，以解决面临严重疾病的人的遗产概念，以告知遗产和患者治疗选择的概念框架。该协议遵循Levac等人提出的指南，该指南扩展了Arksey和O 'Malley引入的框架，以及乔安娜布里格斯研究所审稿人手册。这个范围审查将探索几个电子数据库，包括PubMed， Medline， CINAHL, Cochrane Library， PsycINFO等，并将包括传统特定的灰色文献，包括通过ProQuest提供的论文研究。将对1990年至今的英语文献进行初步搜索，选定关键词以确定相关文章并完善搜索策略。在检索策略确定后，2名独立审稿人将进行两部分的研究选择过程。在第一步，审稿人将筛选文章标题和摘要，根据预先确定的排除或纳入标准确定每篇文章的资格。第三位资深审稿人将对包含或排除的差异进行仲裁。第二步，全文将由2名审稿人进行筛选，只保留相关文章。相关的研究数据将被提取、整理和绘制成图表，以总结与遗产构建相关的主要发现。这项研究将确定面临严重疾病的人如何定义遗产，以及他们对遗产的思考如何影响他们对医疗的选择。我们将注意文献库中的空白。这项研究的发现将为一个概念模型提供信息，该模型概述了关于遗产的想法如何影响患者的治疗选择。本研究结果将提交给有索引的期刊。在严重疾病的连续过程中，遗赠在患者治疗决策中的作用知之甚少。特别是，目前还没有一个全面的概念模型，可以让人们了解在严重疾病期间做出护理决定时是如何考虑遗产的。这项研究将是第一个构建一个概念模型，详细说明对遗产的考虑如何影响面临或患有严重疾病的人的医疗决策。derr1 - 10.2196/40791
Legacy—what one leaves behind and how one hopes to be remembered after death—is an unexplored and important dimension of decision-making for people facing serious illnesses. A preliminary literature review suggests that patients facing serious illness consider legacy when making medical decisions, for example, forgoing expensive treatment with limited or unknown clinical benefit to preserve one’s inheritance for their children. To date, very little is known about the conceptual foundations of legacy. No conceptual frameworks exist that provide a comprehensive understanding of how legacy considerations relate to patient choices about their medical care. The objective of this scoping review is to understand the extent and type of research addressing the concept of legacy by people facing serious illness to inform a conceptual framework of legacy and patient treatment choices. This protocol follows the guidelines put forth by Levac et al, which expands the framework introduced by Arksey and O’Malley, as well as the Joanna Briggs Institute Reviewer’s manual. This scoping review will explore several electronic databases including PubMed, Medline, CINAHL, Cochrane Library, PsycINFO, and others and will include legacy-specific gray literature, including dissertation research available via ProQuest. An initial search will be conducted in English-language literature from 1990 to the present with selected keywords to identify relevant articles and refine the search strategy. After the search strategy has been finalized, 2 independent reviewers will undertake a 2-part study selection process. In the first step, reviewers will screen article titles and abstracts to identify the eligibility of each article based on predetermined exclusion or inclusion criteria. A third senior reviewer will arbitrate discrepancies regarding inclusions or exclusions. During the second step, the full texts will be screened by 2 reviewers, and only relevant articles will be kept. Relevant study data will be extracted, collated, and charted to summarize the key findings related to the construct of legacy. This study will identify how people facing serious illness define legacy, and how their thinking about legacy impacts the choices they make about their medical treatments. We will note gaps in the literature base. The findings of this study will inform a conceptual model that outlines how ideas about legacy impact the patient’s treatment choices. The results of this study will be submitted to an indexed journal. Very little is known about the role of legacy in the treatment decisions of patients across the continuum of serious illness. In particular, no comprehensive conceptual model exists that would provide an understanding of how legacy is considered by people making decisions about their care during serious illness. This study will be among the first to construct a conceptual model detailing how considerations of legacy impact medical decision-making for people facing or living with serious illnesses. DERR1-10.2196/40791