Using data linkage to identify First Nations Manitobans - Technical, ethical, and political issues
Using data linkage to identify First Nations Manitobans - Technical, ethical, and political issues
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DOI：
10.1007/bf03405313
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发表时间：
2005-01-01
影响因子：
4.3
通讯作者：
Martens, PJ
中科院分区：
文献类型：
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作者：
Jebamani, LS;Burchill, CA;Martens, PJ
背景：马尼托巴省卫生登记处没有完全确定马尼托巴省原住民的身份，这影响了仅使用这一数据来源充分描述他们的健康状况和卫生服务使用情况的能力。本文描述了在马尼托巴省卫生政策中心(MCHP)基于人口的报告中创建有效数据库的过程。方法：印度注册局的身份核查系统(SVS)文件是一个国家数据库，其中包含有资格通过《印第安人法案》获得福利的已登记第一民族的完整名单。通过与马尼托巴省酋长卫生信息研究委员会、加拿大印第安人和北方事务部、FNIHB、马尼托巴省卫生局和MCHP进行谈判，实现了SVS档案与马尼托巴省卫生局登记处的联系。在116,7177份SVS记录和5,803份死亡记录中，97,635人与马尼托巴省健康登记处有关。结果：性别匹配99%，姓氏匹配70%，姓氏匹配94%，出生年份匹配96%。这一总数意味着来自印度登记处的记录减少了20%。女性、老年人和南部地区的降幅更大。结论：这种联系导致仅马尼托巴省健康数据就增加了20%。我们无法将所有记录联系起来可能是由于几个因素。居住在马尼托巴省以外、隶属马尼托巴省的个人不能与马尼托巴省健康登记处联系起来。居住在马尼托巴省但隶属于非马尼托巴省乐队的第一民族不会出现在获得的文件中。最后，印度登记处可能会少报出生、死亡和婚后的姓氏变化。这种联系使妇幼保健方案能够比其他情况下更准确地了解原住民的健康状况和保健服务的使用情况。鼓励与马尼托巴省卫生数据的持续联系，以及在加拿大其他地方的类似联系。
Background: The Manitoba Health Registry does not fully identify First Nations Manitobans, impacting the ability to adequately describe their health status and use of health services using this data source alone. This paper describes the processes in producing a valid database for use in a population-based report by the Manitoba Centre for Health Policy (MCHP).Methods: The Indian Registry's Status Verification System (SVS) file is a national database containing a complete list of Registered First Nations eligible for benefits through the Indian Act. Through negotiations with the Assembly of Manitoba Chiefs' Health Information Research Committee, Indian and Northern Affairs Canada, FNIHB, Manitoba Health, and MCHP, a linkage of the SVS files and Manitoba Health's Registry was accomplished. Of the 116,7177 SVS records and 5,803 deceased records, 97,635 individuals linked to the Manitoba Health Registry.Results: There was a 99% match on gender, 70% match on surname, 94% match on given name, and 96% match on birth year. The total represents a 20% decrease in records from the Indian Registry. The decrease was greater for females, older people and those from southern areas.Conclusion: The linkage resulted in a 20% increase over Manitoba Health data alone. Our inability to link all of the records may be due to several factors. Individuals with a Manitoba Band affiliation living outside of the province could not be linked to the Manitoba Health Registry. First Nations living in Manitoba but affiliated with a non-Manitoba Band would not have been in the file obtained. Finally, births, deaths and surname change after marriage may be under-reported to the Indian Registry. This linkage enabled MCHP to provide a more accurate picture of First Nations health status and use of health care services than otherwise would have been available. Ongoing linkages with Manitoba Health data, as well as similar linkages elsewhere in Canada, are encouraged.