Stigma and Pain in Adolescents Hospitalized for Sickle Cell Vasoocclusive Pain Episodes
Stigma and Pain in Adolescents Hospitalized for Sickle Cell Vasoocclusive Pain Episodes
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DOI：
10.1097/ajp.0000000000000553
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发表时间：
2018-05-01
影响因子：
2.9
通讯作者：
Dampier, Carlton
中科院分区：
文献类型：
--
作者：
Martin, Sarah R.;Cohen, Lindsey L.;Dampier, Carlton
目的：镰状细胞病(SCD)的疼痛和住院率在青春期增加，患有SCD的青少年可能面临与健康相关的耻辱，这可能导致不良的健康结局。这项研究考察了与健康相关的耻辱、疼痛干预、社会支持、生活质量(QOL)和住院结果(即孤独、疼痛减轻和住院时间[LOS])之间的关系。材料和方法：12至18岁的SCD疼痛住院青少年(N=92)完成了耻辱、疼痛干预、社会支持、生活质量和状态孤独的测量。从病历回顾中收集住院期间疼痛强度的降低和LOS。结果：污名越高，在医院的疼痛干预度越高，生活质量越低，孤独感越多，疼痛减轻越少。疼痛干预与LOS呈正相关。讨论：这些初步发现强调了评估和解决因SCD疼痛而住院的青少年与SCD相关的耻辱和疼痛干预的重要性，因为这些因素可能会影响治疗结果。
Objectives:Sickle cell disease (SCD) pain and hospitalizations increase during adolescence and adolescents with SCD may be at-risk for experiencing health-related stigma, which may result in poor health outcomes. This study examined relations among health-related stigma, pain interference, social support, quality of life (QOL), and hospital outcomes (ie, loneliness, pain reduction, and length of stay [LOS]) in adolescents hospitalized with SCD pain.Materials and Methods:Twelve- to 18-year-old adolescents (N=92) hospitalized with SCD pain completed measures of stigma, pain interference, social support, QOL, and state loneliness. Reduction of pain intensity during hospitalization and LOS were collected from medical chart review.Results:Higher stigma was associated with higher pain interference, lower QOL, more loneliness, and less pain reduction in the hospital. Pain interference was positively associated with LOS.Discussion:These preliminary findings highlight the importance of assessing and addressing SCD-related stigma and pain interference in adolescents hospitalized for SCD pain as these factors may influence treatment outcomes.