Physicians' perspective on quality of life: An exploratory study of oncologists
Physicians' perspective on quality of life: An exploratory study of oncologists
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DOI：
10.1007/bf00435963
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发表时间：
1996-02-01
影响因子：
3.5
通讯作者：
DePetrillo, AD
中科院分区：
文献类型：
--
作者：
Taylor, KM;Macdonald, KG;DePetrillo, AD
有一个隐含的假设，医生将生活质量（QOL）信息纳入临床决策。然而，关于医生如何看待生活质量信息以及他们如何实际使用这些信息的数据非常有限。为了探讨这个问题，我们对加拿大和美国的60名肿瘤学家进行了一项深入的研究，采用了半结构化的访谈指南。虽然大多数受访者认为生活质量很重要，但他们倾向于非正式地使用它，而不是在所有情况下使用它。主要发现包括88%的受访者认为生活质量一词是可以定义的，尽管他们的定义不同。虽然85%的人表示生活质量可以正式测量，但只有三分之一的人认为目前的仪器提供了有效和可靠的数据。受访者指出，在他们的临床实践中使用生活质量数据的一些显着的好处和缺点，在以前的文献中没有注意到。例如，在临床试验中使用它作为终点通常被认为可以提高医生和患者的参与度。注意到的一个缺点是，包括生活质量可能会对决策过程产生不利影响。这些发现已被用于开发自我管理问卷（MD-QOL），以测试这些发现的普遍性。
There is an implicit assumption that physicians incorporate quality of life (QOL) information in clinical decision-making. However, very limited data exists on how physicians view QOL information and how they actually use it. To explore this issue, an in-depth study was conducted using a semi-structured interview guide, with 60 oncologists in Canada and the USA. While the majority of respondents perceived QOL as important they reported a tendency to use it informally and not in all situations. Key findings include the belief expressed by 88% of respondents that the term QOL could be defined, although they differed in their definitions. Although 85% stated that QOL can be formally measured, only a third perceived that the current instruments provide valid and reliable data. Respondents noted a number of significant benefits and drawbacks of using QOL data in their clinical practice that had not been previously noted in the literature. For example, its use as an endpoint in clinical trials was generally perceived to enhance both physician and patient participation. A drawback noted was that including QOL might adversely affect the decision-making process. These findings have been used to develop a self-administered questionnaire (MD-QOL) which will test the generalizability of these findings.