Public perspectives on acquired brain injury rehabilitation and components of care: A Citizens' Jury.
Public perspectives on acquired brain injury rehabilitation and components of care: A Citizens' Jury.
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DOI：
10.1111/hex.13176
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发表时间：
2021-04
期刊：
影响因子：
--
通讯作者：
Unsworth CA
中科院分区：
文献类型：
--
作者：
Lannin NA;Coulter M;Laver K;Hyett N;Ratcliffe J;Holland AE;Callaway L;English C;Bragge P;Hill S;Unsworth CA
脑损伤康复是一项昂贵且长期的工作。很少有公开的信息或辩论支持澳大利亚的服务提供政策。在有限的卫生预算和为脑损伤患者提供最佳护理的挑战的背景下，公众被问到“在脑损伤康复护理模式中，哪些考虑因素是重要的？”质性研究采用公民陪审团参与式研究方法。来自社区的12名成年陪审员和7名证人参加了会议，其中包括一名卫生服务资助模型专家，具有脑损伤生活经验的峰值身体代表，脑损伤患者的护理人员和脑损伤康复专家。陪审员在两天内对证人进行了盘问。关键主题涉及康复模式的必要性：以消费者为中心，支持保留希望;长期;提供公平的服务，无论资金来源如何;包括家庭;提供宣传;提高公众意识;由专家在适当的环境中提供。提出了一套八项建议。鼓励所提出的建议需要仔细考虑是否需要灵活服务的新护理模式;家庭参与;招聘和留住高技能工作人员;以及提供以消费者为中心的服务，使个人及其照顾者做好长期准备。作为陪审团成员，公众审议专家证人（包括头部受伤的人）提供的信息，并撰写关键建议。
Brain injury rehabilitation is an expensive and long‐term endeavour. Very little published information or debate has underpinned policy for service delivery in Australia. Within the context of finite health budgets and the challenges associated with providing optimal care to persons with brain injuries, members of the public were asked ‘What considerations are important to include in a model of care of brain injury rehabilitation?’ Qualitative study using the Citizen Jury method of participatory research. Twelve adult jurors from the community and seven witnesses participated including a health services funding model expert, peak body representative with lived experience of brain injury, carer of a person with a brain injury, and brain injury rehabilitation specialists. Witnesses were cross‐examined by jurors over two days. Key themes related to the need for a model of rehabilitation to: be consumer‐focused and supporting the retention of hope; be long‐term; provide equitable access to services irrespective of funding source; be inclusive of family; provide advocacy; raise public awareness; and be delivered by experts in a suitable environment. A set of eight recommendations were made. Instigating the recommendations made requires careful consideration of the need for new models of care with flexible services; family involvement; recruitment and retention of highly skilled staff; and providing consumer‐focused services that prepare individuals and their carers for the long term. As jury members, the public deliberated information provided by expert witnesses (including a person with a head injury) and wrote the key recommendations.
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影响因子：
3
作者：
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通讯作者：
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影响因子：
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