Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology
Online focus groups as a tool to collect data in hard-to-include populations: examples from paediatric oncology
复制标题
DOI：
10.1186/1471-2288-9-15
复制
发表时间：
2009-03-03
影响因子：
4
通讯作者：
Bensing, Jozien M.
中科院分区：
文献类型：
--
作者：
Tates, Kiek;Zwaanswijk, Marieke;Bensing, Jozien M.
背景：本文的目的是描述和评价儿童肿瘤学背景下在线焦点小组讨论的方法。方法：定性研究包括7名儿童癌症患者(8-17岁)、11名父母和18名儿童癌症幸存者(确诊时为8-17岁)的独立主持的异步在线讨论小组。结果：所有三个参与者小组都可以在一周的时间内积极参与。受访者高度评价在自己的时间和地点登录加入讨论的灵活性和便利性。青少年患者和幸存者强调，匿名的经历让他们感到舒服，可以详细表达自己的观点。结论：在线焦点小组方法是在儿科肿瘤学背景下收集定性数据的一种可行的工具，并可能为在其他难以纳入的人群中收集数据提供新的机会。这些评价似乎表明，在线小组讨论给了参与者一个机会，让他们以一种他们在传统小组讨论中可能无法做到的方式，阐述他们的经验和观点。
Background: The purpose of this article is to describe and evaluate the methodology of online focus group discussions within the setting of paediatric oncology.Methods: Qualitative study consisting of separate moderated asynchronous online discussion groups with 7 paediatric cancer patients (aged 8-17), 11 parents, and 18 survivors of childhood cancer (aged 8-17 at diagnosis).Results: All three participant groups could be actively engaged over a one-week period. Respondents highly valued the flexibility and convenience of logging in at their own time and place to join the discussion. Adolescent patients and survivors emphasized that the anonymity experienced made them feel comfortable to express their views in detail. The findings indicate a strong preference for online group discussions across all participant groups.Conclusion: The findings show that online focus group methodology is a feasible tool for collecting qualitative data within the setting of paediatric oncology, and may offer new opportunities to collect data in other hard-to-include populations. The evaluations seem to indicate that the online group discussions have given participants an opportunity to articulate their experiences and views in a way they might not have done in a traditional group discussion.