Obtaining data linkage consent for children: factors influencing outcomes and potential biases
Obtaining data linkage consent for children: factors influencing outcomes and potential biases
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DOI：
10.1080/13645579.2015.1064635
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发表时间：
2016-01-01
影响因子：
3.3
通讯作者：
Al Baghal, Tarek
中科院分区：
文献类型：
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作者：
Al Baghal, Tarek
了解与同意数据链接相关的因素主要集中在成年人身上，但也可以要求父母或监护人代表他们负责的儿童同意。一个框架的同意决定，并测试使用一个大型的全国代表性的调查，要求母亲同意为自己和他们的孩子两套记录。几乎所有母亲都会为所有孩子提供相同的同意结果。教育记录的同意率高于健康记录，母亲的同意率高于儿童。多变量分析表明，少数族裔通常不太可能同意，而更多的信任会增加同意的机会。有几个调查环境因素很重要，难以联系的受访者不太可能同意，而其他人的存在和更高的访谈者-受访者关系导致更高的同意机会。这些研究结果表明，潜在的方法，以提高同意率，并可能尽量减少偏见。这一点很重要，因为在同意结果方面儿童之间存在显著的人口统计学差异。然而，研究中对10-15岁青奥尔兹的调查数据显示，在同意结果中，几种重要行为和态度的差异较小。
Understanding factors associated with consent for data linkage has largely focussed on adults, but parents or guardians can also be asked to consent on behalf of children for whom they are responsible. A framework for consent decision is presented, and is tested using a large nationally representative survey asking mothers to consent for both themselves and their children for two sets of records. Nearly all mothers give the same consent outcome for all their children. Consent rates are higher for education records than for health records and higher for mothers than children. Multivariate analyses suggest that minorities are generally less likely to consent, while more trust increases chances of consent. Several survey environment factors are important, with harder-to-contact respondents less likely to consent, while the presence of others and higher interviewer-respondent rapport lead to a higher chance of consent. These findings suggest potential methodologies to improve consent rates and possibly minimise bias. This is important given significant demographic differences between children across consent outcomes. However, data from a survey of 10-15 year olds in the study shows fewer differences for several important behaviours and attitudes across consent outcomes.