Clinical priorities, barriers and solutions in end-of-life cancer care research across Europe. Report from a workshop
Clinical priorities, barriers and solutions in end-of-life cancer care research across Europe. Report from a workshop
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DOI：
10.1016/j.ejca.2010.03.012
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发表时间：
2010-07-01
影响因子：
8.4
通讯作者：
Kaasa, Stein
中科院分区：
文献类型：
--
作者：
Sigurdardottir, Katrin Ruth;Haugen, Dagny Faksvag;Kaasa, Stein
目的：PRISMA项目旨在协调欧洲临终（EOL）护理的研究优先事项，测量和实践。作为PRISMA的一部分，我们进行了问卷调查和随后的研讨会（1）确定临床优先事项，在欧洲的EOL护理研究，并提出了未来的研究议程和（2）确定障碍，EOL护理research，和可能性和解决方案，以提高research.Methods：30名参与者中选出的主要医疗调查应答者来自25个欧洲国家出席。26个国家根据调查结果回答了研讨会前的调查问卷。小组工作是一个主要组成部分的workshop.Results：达成共识，在欧洲的EOL癌症护理研究的以下优先事项：肿瘤学，相关问题的临终关怀，政策和组织的服务。在所有领域，包括评估/衡量和分类方面，方法都被视为重要。症状研究应特别强调疼痛、疲劳、恶病质、谵妄和呼吸困难。研究应该从描述性研究转向干预性研究。对定义和结果缺乏共识被认为是研究的一个重大障碍。其他障碍涉及能力和资金、环境和文化以及知识转让和传播。这些领域是相互关联的，不应该被孤立地解决。结论：在未来几年内，在优先领域和研究性质的EOL护理研究取得了共识，并制定了一个解决障碍的模型。(C)2010爱思唯尔有限公司保留所有权利。
Aim: The PRISMA project is aiming to co-ordinate research priorities, measurement and practice in end-of-life (EOL) care in Europe. As part of PRISMA we undertook a questionnaire survey and a subsequent workshop to (1) identify clinical priorities for EOL care research in Europe and propose a future research agenda and (2) identify barriers to EOL care research, and possibilities and solutions to improve the research.Methods: Thirty participants selected among the principally medical survey responders from 25 European countries attended. Twenty-six answered a preparatory pre-workshop questionnaire based on the survey results. Group work was a main part of the workshop.Results: Consensus was reached on the following priorities for EOL cancer care research in Europe: symptomatology, issues related to care of the dying, and policy and organisation of services. Methodology was regarded important in all areas, including assessment/measurement and classification. Symptom research should particularly emphasise pain, fatigue, cachexia, delirium and breathlessness. Research should move from descriptive to interventional studies. The lack of consensus on definitions and outcomes was identified as a substantial research barrier. Other barriers were related to capacity and funding, environment and culture and knowledge transfer and dissemination. These areas are interrelated and should not be addressed in isolation.Conclusion: Consensus was obtained on priority areas and research nature for EOL care research in the next years, and a model for addressing barriers was developed. (C) 2010 Elsevier Ltd. All rights reserved.