Patient-Reported Quality Measures for Palliative Care: The Time is now.
Patient-Reported Quality Measures for Palliative Care: The Time is now.
复制标题
患者报告的姑息治疗质量措施：现在是时候了。
DOI：
10.1016/j.jpainsymman.2022.11.001
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发表时间：
2023
影响因子：
4.7
通讯作者：
Ahluwalia,SangeetaC
中科院分区：
文献类型：
--
作者：
Walling,AnneM;Ast,Katherine;Harrison,JordanM;Dy,SydneyM;Ersek,Mary;Hanson,LauraC;Kamal,ArifH;Ritchie,ChristineS;Teno,JoanM;Rotella,JosephD;Periyakoil,VyjeyanthiS;Ahluwalia,SangeetaC
ContextWhile progress has been made in the ability to measure the quality of hospice and specialty palliative care, there are notable gaps. A recent analysis conducted by Center for Medicare and Medicaid Services (CMS) revealed a paucity of patient-reported measures, particularly in palliative care domains such as symptom management and communication.ObjectivesThe research team, consisting of quality measure and survey developers, psychometricians, and palliative care clinicians, used established state-of-the art methods for developing and testing patient-reported measures.MethodsWe applied a patient-centered, patient-engaged approach throughout the development and testing process. This sequential process included 1) an information gathering phase; 2) a pre-testing phase; 3) a testing phase; and 4) an endorsement phase.ResultsTo fill quality measure gaps identified during the information gathering phase, we selected two draft measures (“Feeling Heard and Understood” and “Receiving Desired Help for Pain”) for testing with patients receiving palliative care in clinic-based settings. In the pre-testing phase, we used an iterative process of cognitive interviews to refine draft items and corresponding response options for the proposed measures. The alpha pilot test supported establishment of protocols for the national beta field test. Measures met conventional criteria for reliability, had strong face and construct validity, and there was diversity in program level scores. The measures received National Quality Forum (NQF) endorsement.ConclusionThese measures highlight the key role of patient voices in palliative care and fill a much-needed gap for patient-reported experience measures in our field.
