Clinicians and Older Adults' Perceptions of the Utility of Patient-Generated Health Data in Caring for Older Adults: Exploratory Mixed Methods Study.
Clinicians and Older Adults' Perceptions of the Utility of Patient-Generated Health Data in Caring for Older Adults: Exploratory Mixed Methods Study.
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作者：
Kim B;Ghasemi P;Stolee P;Lee J
许多人都有动力通过移动的健康应用程序和可穿戴设备自我跟踪他们的健康状况并优化他们的健康状况。这些系统的多样性和复杂性随着时间的推移而发展，产生了大量被称为患者生成的健康数据（PGHD）的数据，这些数据最近已成为世界各地医疗保健系统中有用的数据元素集。尽管对PGHD的兴趣越来越大，但临床医生和老年人对PGHD的看法却知之甚少。特别是，尽管已经确定了一些临床医生使用PGHD的障碍，例如对数据质量、易用性、可靠性、隐私和监管问题的担忧，但从老年人的角度来看，我们知之甚少。本研究旨在探讨老年人和临床医生对如何使用各种类型的PGHD来照顾老年人的看法的相似性和差异。进行了一项混合方法研究，以探讨临床医生和老年人对PGHD的看法。焦点小组进行了与老年人和医疗保健提供者从大多伦多地区和基奇纳-滑铁卢地区。参与者被要求讨论他们对PGHD的看法，包括促进因素和障碍。一份旨在探索一系列不同PGHD的感知有用性的问卷也嵌入了研究设计中。焦点小组访谈转录的主题分析，而问卷结果进行了分析，使用描述性统计。在9名参与者中，4名（44%）为临床医生（平均年龄38.3岁，SD 7岁），5名（56%）为老年人（平均年龄81.0岁，SD 9.1岁）。从焦点小组访谈中确定了四个主题：PGHD对患者-供应商信任的影响，PGHD的可靠性，PGHD和基于PGHD的决策支持系统的有意义的使用，以及PGHD的临床益处和侵入性。问卷结果与焦点小组访谈中提到的PGHD频率显著相关（r=0.42; P=.03），并表明老年人和临床医生认为血糖，步数，体力活动，睡眠，血压和压力水平是管理健康和提供高质量护理的最有用的数据。这项嵌入式混合方法研究产生了几个重要的发现，老年人和临床医生的看法和一系列PGHD的感知有用性。由于这项研究的探索性，需要进一步的研究来了解对数据隐私的担忧，对老年人和临床医生之间信任的潜在负面影响，数据质量和数量，以及PGHD相关技术对老年人的可用性。
Many people are motivated to self-track their health and optimize their well-being through mobile health apps and wearable devices. The diversity and complexity of these systems have evolved over time, resulting in a large amount of data referred to as patient-generated health data (PGHD), which has recently emerged as a useful set of data elements in health care systems around the world. Despite the increased interest in PGHD, clinicians and older adults’ perceptions of PGHD are poorly understood. In particular, although some clinician barriers to using PGHD have been identified, such as concerns about data quality, ease of use, reliability, privacy, and regulatory issues, little is known from the perspectives of older adults. This study aims to explore the similarities and differences in the perceptions of older adults and clinicians with regard to how various types of PGHD can be used to care for older adults. A mixed methods study was conducted to explore clinicians and older adults’ perceptions of PGHD. Focus groups were conducted with older adults and health care providers from the Greater Toronto area and the Kitchener-Waterloo region. The participants were asked to discuss their perceptions of PGHD, including facilitators and barriers. A questionnaire aimed at exploring the perceived usefulness of a range of different PGHD was also embedded in the study design. Focus group interviews were transcribed for thematic analysis, whereas the questionnaire results were analyzed using descriptive statistics. Of the 9 participants, 4 (44%) were clinicians (average age 38.3 years, SD 7 years), and 5 (56%) were older adults (average age 81.0 years, SD 9.1 years). Four main themes were identified from the focus group interviews: influence of PGHD on patient-provider trust, reliability of PGHD, meaningful use of PGHD and PGHD-based decision support systems, and perceived clinical benefits and intrusiveness of PGHD. The questionnaire results were significantly correlated with the frequency of PGHD mentioned in the focus group interviews (r=0.42; P=.03) and demonstrated that older adults and clinicians perceived blood glucose, step count, physical activity, sleep, blood pressure, and stress level as the most useful data for managing health and delivering high-quality care. This embedded mixed methods study generated several important findings about older adults and clinicians’ perceptions and perceived usefulness of a range of PGHD. Owing to the exploratory nature of this study, further research is needed to understand the concerns about data privacy, potential negative impact on the trust between older adults and clinicians, data quality and quantity, and usability of PGHD-related technologies for older adults.
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影响因子：
7.4
作者：
Paré G;Leaver C;Bourget C
通讯作者：
Bourget C
新兴的患者驱动医疗保健模型：对健康社交网络，消费者个性化医学和量化自我追踪的检查。
DOI：
10.3390/ijerph6020492
发表时间：
2009-02
影响因子：
--
作者：
Swan M
通讯作者：
Swan M
影响因子：
15.8
作者：
Piwek L;Ellis DA;Andrews S;Joinson A
通讯作者：
Joinson A
影响因子：
5
作者：
Kim BY;Lee J
通讯作者：
Lee J
影响因子：
4.6
作者：
Swan, Melanie
通讯作者：
Swan, Melanie