Developing the ICF Core Sets for multiple sclerosis to specify functioning
Developing the ICF Core Sets for multiple sclerosis to specify functioning
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DOI：
10.1177/1352458507082615
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发表时间：
2008-03-01
影响因子：
5.8
通讯作者：
Stucki, Gerold
中科院分区：
文献类型：
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作者：
Kesselring, J.;Coenen, Michaela;Stucki, Gerold
在评估多发性硬化症(MS)对个体的影响以及治疗和康复的有效性时，越来越多地考虑到功能。有了《国际功能、残疾和健康分类》，我们现在可以依靠一个全球商定的框架和制度，根据人们所生活的环境，对他们在功能方面的典型问题进行分类。ICF核心集是选择ICF类别的列表，以捕捉最有可能受到特定疾病影响的功能方面。本文件的目的是概述ICF多发性硬化症核心集的制定过程。ICF多发性硬化症核心集将在ICF核心集共识会议上确定，该会议将综合来自筹备研究的证据，即：a)对多发性硬化症研究中报告的参数进行系统审查；b)使用焦点小组和对多发性硬化症患者的个别访谈进行定性研究；c)对参加的国际卫生专业人员进行专家调查；d)进行经验性横断面研究。针对多发性硬化症的ICF核心集合正在设计中，目的是为研究和临床实践提供有用的标准。
Functioning is increasingly being taken into account for evaluating the impact of multiple sclerosis ( MS) on the individual and the effectiveness of treatment and rehabilitation. With the International Classification of Functioning, Disability and Health ( ICF), we can now rely on a globally- agreed- upon framework and system for classifying the typical spectrum of problems in functioning of persons given the environmental context in which they live. ICF Core Sets are lists of ICF categories selected to capture those aspects of functioning that are most likely to be affected by specific diseases. The objective of this document is to outline the development process for the ICF Core Sets for MS. The ICF Core Sets for MS will be defined at an ICF Core Set Consensus Conference, which will integrate evidence from preparatory studies, namely: a) a systematic review on parameters reported in MS studies; b) a qualitative study using focus groups and individual interviews with individuals with MS; c) an expert survey with international health professionals participating and d) an empirical cross- sectional study. The ICF Core Sets for MS are being designed with the goal of providing useful standards for research and clinical practice.