Destroying the Village in Order to Save It: Collateral Damage in the Battle Over Lyme Disease.

Destroying the Village in Order to Save It: Collateral Damage in the Battle Over Lyme Disease.
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DOI:
10.1093/ofid/ofac153
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发表时间:
2022-05
影响因子:
4.2
通讯作者:
Boyce RM
Boyce RM
中科院分区:
医学3区
文献类型:
--
作者:
Boyce RM

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一家联邦法院最近驳回了一群莱姆病患者对美国传染病协会(IDSA)提起的诉讼。虽然这一结果代表着IDSA的一次重要胜利,但我认为,它也应该成为我们处理“慢性”莱姆病患者的一个转折点,他们中的许多人都经历了实质性的症状,并由于诊断的不确定性而遭受情感负担。随着莱姆病发病率的持续增加和病媒地理范围的扩大,传染病专家--病史采集、体检和诊断方面的专家--应该发挥主导作用,不仅要打击普遍存在的错误信息,更重要的是让患者受益。关于“慢性”莱姆病概念的争论促成了将患者排除在专科护理之外的政策。这些患者中的许多人,如果不是大多数的话,都会经历巨大的症状负担,寻求可靠的信息,并从传染病咨询中受益。
A federal court recently dismissed the case against the Infectious Diseases Society of America (IDSA) brought by a group of patients with Lyme disease. While the outcome represented an important victory of the IDSA, I argue that it should also serve as a turning point in our approach to patients with “chronic” Lyme disease, many of whom experience substantial symptoms and suffer an emotional burden due to the uncertainty of their diagnosis. As the incidence of Lyme disease continues to increase and the geographic range of the vector expands, infectious disease specialists—experts in history taking, physical examination, and diagnosis—should play a leading role, not only to combat pervasive misinformation, but more importantly to benefit patients. Debate over the concept of “chronic” Lyme disease has contributed to policies that exclude patients from specialist care. Many, if not most, of these patients experience substantial symptom burden, are seeking trustworthy information, and benefit from infectious diseases consultation.
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