Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly disgnosed with breast cancer
Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly disgnosed with breast cancer
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DOI：
10.1002/pon.1084
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发表时间：
2007-05-01
期刊：
影响因子：
3.6
通讯作者：
Hawkins, Robert P.
中科院分区：
文献类型：
--
作者：
Arora, Neeraj K.;Rutten, Lila J. Finney;Hawkins, Robert P.
我们评估了新诊断出乳腺癌的女性从家人、朋友和医疗保健提供者那里获得的信息、情感和决策支持的有用性。通过患者调查在两个时间点收集数据：诊断后平均 2 个月的基线和基线后 5 个月的随访。在接近诊断的时期，大多数女性从医疗保健提供者那里获得了有用的信息支持（84.0%）；来自家人（85%）、朋友（80.4%）和提供者（67.1%）的有益情感支持；来自提供者（75.2%）和家人（71.0%）的有益决策支持。基线时的情感支持以及 5 个月随访时的情感和信息支持与患者的健康相关生活质量和自我效能结果显着相关（p < 0.01）。然而，家人、朋友和提供者提供的信息、情感和决策支持的感知帮助随着时间的推移显着下降 (p < 0.001)。癌症患者在整个癌症治疗过程中需要大量的支持。我们的结果表明，虽然患者在接近诊断期间获得了大量支持，但在第一年内获得的有用支持显着下降。为了促进癌症患者适应他们的疾病，需要努力了解和满足他们在整个癌症经历中的支持需求。版权所有 (c) 2006 John Wiley & Sons, Ltd.
We evaluated the helpfulness of informational, emotional, and decision-making support received by women newly diagnosed with breast cancer from their family, friends, and health care providers. Data were collected at two time points via patient surveys: baseline on an average 2 months post-diagnosis and follow-up at 5 months post-baseline. In the period closer to diagnosis, majority of the women received helpful informational support from health care providers (84.0%); helpful emotional support from family (85%), friends (80.4%), and providers (67.1%); and helpful decision-making support from providers (75.2%) and family (71.0%). Emotional support at baseline and emotional and informational support at 5-month follow-up were significantly associated with patients' health-related quality of life and self-efficacy outcomes (p < 0.01). Perceived helpfulness of informational, emotional, and decision-making support provided by family, friends, and providers however significantly decreased over time (p < 0.001). Cancer patients desire significant amount of support throughout their cancer journey. Our results show that while patients receive a lot of support during the period closer to diagnosis, receipt of helpful support drops significantly within the first year itself. In order to facilitate cancer patients' adjustment to their illness, efforts need to be made to understand and address their support needs throughout the cancer experience. Copyright (c) 2006 John Wiley & Sons, Ltd.