Inconsistencies with physical functioning and the child health questionnaire in children with cerebral palsy.
Inconsistencies with physical functioning and the child health questionnaire in children with cerebral palsy.
复制标题
脑瘫儿童身体机能与儿童健康问卷的不一致。
DOI：
10.1016/j.jpeds.2008.02.029
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发表时间：
2008
期刊：
影响因子：
--
通讯作者：
Vargus-Adams,JildaN
中科院分区：
文献类型：
--
作者：
Vargus-Adams,JildaN
目的探讨脑性瘫痪(CP)儿童健康问卷(CHQ)中躯体功能(PF)分量表的表现。结果5级粗大运动功能分级系统评分与粗大运动功能分级呈负相关(R=−0.6 2)，并呈双峰分布。对于GMFCS分类IV和V(n=59)，PF得分非常低(平均9到28分；中值0到8分)；然而，尽管这些受试者中有12%的人尽管是非门诊的，但有12%的受试者的PF得分很好(>；88)。结论尽管CHQ PF子量表与GMFCS有很好的相关性，但CHQ关于身体功能的问题导致了大约1/8的重度脑瘫患者出现意外反应。这些出乎意料的回答可能是由于问题含糊不清(没有区分健康问题和残疾)，或者是父母对身体功能的另类解释。在区分健康状况和功能状况方面的混淆可能会使CHQ对有严重残疾的儿童不那么有用。
OBJECTIVESTo explore the performance of the Physical Functioning (PF) subscale of the Child Health Questionnaire (CHQ) in children with cerebral palsy (CP).STUDY DESIGNParents of 177 children and adolescents (age 3 to 18 years) with CP completed the CHQ -Parent Form 50. Severity of CP was assessed using the 5-level Gross Motor Function Classification System (GMFCS), in which higher levels reflect more severe impairment.RESULTSPF scores were negatively correlated with GMFCS classification (R = −0.62) and were distributed bimodally in subjects with severe motor impairment. For GMFCS classifications IV and V (n = 59), PF scores were very low (means, 9 to 28; medians, 0 to 8); however, 12% of these subjects had excellent PF scores (> 88) despite being nonambulatory.CONCLUSIONSAlthough the CHQ PF subscale correlated well with the GMFCS, the CHQ questions on physical functioning resulted in unexpected responses in approximately 1 in 8 subjects with severe CP. These unanticipated responses to the PF subscale questions may be due to ambiguity in the questions (which do not differentiate between health problems and disability) or to alternative parental interpretation of physical functioning. Confusion in differentiating health status and functional status may make the CHQ less useful in children with significant disabilities.