Ethical considerations in using a smartphone-based GPS app to understand linkages between mobility patterns and health outcomes: The example of HIV risk among mobile youth in rural South Africa.

Ethical considerations in using a smartphone-based GPS app to understand linkages between mobility patterns and health outcomes: The example of HIV risk among mobile youth in rural South Africa.
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使用基于智能手机的 GPS 应用程序了解流动模式与健康结果之间的联系的道德考虑:南非农村流动青年的艾滋病毒风险示例。

DOI:
10.1111/dewb.12376
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发表时间:
2023
影响因子:
2.2
通讯作者:
Wassenaar,Douglas
Wassenaar,Douglas
中科院分区:
人文科学4区
文献类型:
--
作者:
Mathenjwa,Thulile;Nkosi,Busi;Kim,Hae-Young;Bain,LuchuoEngelbert;Tanser,Frank;Wassenaar,Douglas

文献摘要

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带有全球定位系统(GPS)应用程序的智能手机提供了简单而准确的工具来收集人类移动数据。然而,其相关的道德挑战仍有待评估。我们使用Emanuel框架来评估使用智能手机GPS记录南非农村年轻人的流动模式的伦理问题,以进行更大规模的流动性和艾滋病毒风险研究(Sesikhona)。我们进行了四个焦点小组(FGD)与个人资格的Sesikhona研究。FGD数据采用Emanuel框架编码。参与者认为使用智能手机GPS来研究人类流动性和艾滋病毒风险是有价值的。他们对侵犯隐私和保密表示关切。还提到了风险/受益比、知情同意和持续尊重。所表达的关切为制定指南提供了有用的证据基础,以告知未来的参与者在使用GPS技术跟踪移动性和健康相关问题时所产生的伦理问题。
Smartphones with Global Positioning System (GPS) apps offer simple and accurate tools to collect data on human mobility. However, their associated ethical challenges remain to be assessed. We used the Emanuel framework to assess the ethical concerns of using smartphone GPS to record mobility patterns of young adults in rural South Africa for a larger study on mobility and HIV risk (Sesikhona). We conducted four focus groups (FGDs) with individuals eligible for the Sesikhona study. FGD data were coded using the Emanuel framework. Participants perceived use of smartphone GPS to study human mobility and HIV risk as valuable. They raised concerns about invasion of privacy and confidentiality. Also mentioned were risk/benefit ratio, informed consent and ongoing respect. Concerns expressed provided a useful evidence‐base for the development of a guide to inform future participants about ethical issues arising in the use of GPS technology to track mobility and health‐related issues.