Adaptation of the Chronic Disease Self-Management Program for Cancer Survivors: Feasibility, Acceptability, and Lessons for Implementation

Adaptation of the Chronic Disease Self-Management Program for Cancer Survivors: Feasibility, Acceptability, and Lessons for Implementation
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DOI:
10.1007/s13187-014-0652-8
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发表时间:
2014-12-01
影响因子:
1.6
通讯作者:
Ory, M.
Ory, M.
中科院分区:
医学4区
文献类型:
--
作者:
Risendal, B.;Dwyer, A.;Ory, M.

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慢性病的自我管理已被证明可以改善患者报告和医疗保健相关的结果。然而,关于其在癌症生存中的效用的信息相对较少。我们评估了基于证据的慢性病自我管理计划(斯坦福)的可行性和可接受性,称为癌症繁荣和生存(CTS)。采用三角混合方法,结合封闭式和开放式调查项目来获取基线特征和项目后经验;使用紧急编码和简单的描述性统计来总结数据。 2011 年 8 月至 2013 年 1 月期间,22 名 CTS 领导在各种环境(48% 社区、30% 医疗保健、22% 地区/社区癌症中心)向 244 名参与者举办了 27 场研讨会。代表多种癌症类型,大约一半的参与者在诊断后 1-3 年,45% 的参与者在诊断后 4 年或更长时间。项目出席率很高,84% 的参与者参加了研讨会六场会议中的四场或以上。总体而言,95%的参与者对项目内容和领导者感到满意,并将向朋友和家人推荐该项目。这些结果证实了为癌症幸存者提供高保真、同行主导的自我管理支持模型的可行性和可接受性。 CTS 的扩展是改善这一高危人群健康相关结果的有力工具。
Self-management in chronic disease has been shown to improve patient-reported and health care-related outcomes. However, relatively little information about its utility in cancer survivorship is known. We evaluated the feasibility and acceptability of the delivery of an adaptation of the evidence-based Chronic Disease Self-management Program (Stanford) called Cancer Thriving and Surviving (CTS). Triangulated mixed methods were used to capture baseline characteristics and post-program experiences using a combination of closed- and open-ended survey items; emergent coding and simple descriptive statistics were used to summarize the data. Twenty-seven workshops were delivered by 22 CTS leaders to 244 participants between August 2011 and January 2013 in a variety of settings (48 % community, 30 % health care, 22 % regional/community cancer center). Representing a variety of cancer types, about half the participants were 1-3 years post-diagnosis and 45 % were 4 or more years from diagnosis. Program attendance was high with 84 % of participants attending four or more of the six sessions in the workshop. Overall, 95 % of the participants were satisfied with the program content and leaders, and would recommend the program to friends and family. These results confirm the feasibility and acceptability of delivery of a high-fidelity, peer-led model for self-management support for cancer survivors. Expansion of the CTS represents a powerful tool toward improving health-related outcomes in this at-risk population.