Building native Hawaiian capacity in cancer research and programming - A legacy of 'Imi Hale
Building native Hawaiian capacity in cancer research and programming - A legacy of 'Imi Hale
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DOI：
10.1002/cncr.22157
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发表时间：
2006-10-15
期刊：
影响因子：
6.2
通讯作者：
Chong, Clayton
中科院分区：
文献类型：
--
作者：
Braun, Kathryn L.;Tsark, Joann U.;Chong, Clayton
2000年，夏威夷原住民的癌症健康指标比夏威夷其他民族的癌症健康指标更差，在研究工作中夏威夷原住民的代表性不足。为了建设减少癌症健康差距的能力，IMI Hale应用了基于社区的参与性研究(CBPR)和赋权理论的原则。战略包括：1)让夏威夷原住民参与确定癌症的优先事项；2)开发适合文化的过程和产品；3)补充初级和次级癌症预防活动；4)提供技能培训和技术援助；5)提供基础设施，支持符合文化的研究。在2000至2005年间，IMI Hale让8000多名夏威夷原住民参与了教育、培训以及初级和二级预防活动；开发了24种文化定制的教育产品(宣传册、课程和自助工具包)；获得了110万美元的额外计划和研究资金；培训了98名土著研究人员，其中79人从事研究项目；并聘请了3000多名其他夏威夷原住民作为研究参与者和顾问。增强个人能力、增强社区能力和参与、减少障碍和改善对夏威夷社区癌症的支持是赋权的证据。CBPR的运作和赋权需要致力于让尽可能多的人参与进来，解决社区的优先事项，遵循文化礼仪，发展和转让技能，并支持基础设施，以减少障碍和建立支持，以维持变化。这种做法很耗时，但对于能力建设来说是必要的，特别是在土著和少数族裔社区。
In 2000, cancer health indicators for Native Hawaiians were worse than those of other ethnic groups in Hawai'i, and Native Hawaiians were under-represented in research endeavors. To build capacity to reduce cancer health disparities, 'Imi Hale applied principles of community-based participatory research (CBPR) and empowerment theory. Strategies included: 1) engaging Native Hawaiians in defining cancer priorities; 2) developing culturally appropriate processes and products; 3) supplementing primary and secondary cancer prevention activities; 4) offering skills training and technical assistance; and 5) providing an infrastructure to support culturally appropriate research. Between 2000 and 2005, 'Imi Hale involved more than 8000 Native Hawaiians in education, training, and primary and secondary prevention activities; developed 24 culturally tailored educational products (brochures, curricula, and self-help kits); secured $1.1 million in additional program and research funds; trained 98 indigenous researchers, 79 of whom worked on research projects; and engaged more than 3000 other Native Hawaiians as research participants and advisors. Evidence of empowerment was seen in increased individual competence, enhanced community capacity and participation, reduced barriers, and improved supports to address cancer in Hawaiian communities. Operationalizing CBPR and empowerment requires a commitment to involving as many people as possible, addressing community priorities, following cultural protocol, developing and transferring skills, and supporting an infrastructure to reduce barriers and build supports to sustain change. This approach is time consuming, but necessary for building competence and capacity, especially in indigenous and minority communities.