Psychometric properties of cancer survivors' unmet needs survey
Psychometric properties of cancer survivors' unmet needs survey
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DOI：
10.1007/s00520-009-0806-0
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发表时间：
2011-02-01
影响因子：
3.1
通讯作者：
Taylor-Brown, Jill
中科院分区：
文献类型：
--
作者：
Campbell, H. Sharon;Sanson-Fisher, Rob;Taylor-Brown, Jill
本研究旨在开发一种严格的心理测量工具来测量癌症诊断后1至5年的成年癌症幸存者未满足的需求。“未满足的需求”区分幸存者遇到的问题和他们希望帮助管理的问题。该调查是通过全面的文献综述、对71名癌症幸存者6个最重要的未满足需求的定性分析、幸存者和专家对领域和项目的回顾、认知访谈和对100名幸存者的试点测试而开发的。采用分层随机抽样的方法，从癌症登记中心选取550名癌症幸存者，通过邮寄问卷的方式建立信度和效度，最终得到的89个条目的幸存者未满足需求调查表（SUNS）具有较高的可接受性、条目重测信度和内部一致性（Chronbach 'salpha 0.990）、表面效度、内容效度和结构效度。五个分量表衡量情绪健康需求（33项，方差的19.4%），获得和持续护理（22项，15.1%），关系（15项，12.1%），财务问题（11项，10.3%）和信息需求（八项，8.1%的差异）该工具具有强大的心理测量特性，可用于确定癌症幸存者在各种类型的癌症患者中未满足需求的患病率和预测因素。癌症、存活时间和社会人口统计学特征。使用SUNS将能够更有效地确定方案和服务的目标，并指导政策和卫生规划决定，这项研究是朝着循证规划和管理问题迈出的重要一步，因为越来越多的幸存者需要得到管理方面的援助。
This study aims to develop a psychometrically rigorous instrument to measure the unmet needs of adult cancer survivors who are 1 to 5 years post-cancer diagnosis. "Unmet needs" distinguishes between problems which survivors experience and problems which they desire help in managing.The survey was developed from a comprehensive literature review, qualitative analysis of the six most important unmet needs of 71 cancer survivors, review of the domains and items by survivors and experts, cognitive interviews and a pilot test of 100 survivors. A stratified random sample of 550 cancer survivors, selected from a population-based Cancer Registry, completed a mailed survey to establish reliability and validity.The final 89-item Survivors Unmet Needs Survey (SUNS) has high acceptability, item test-retest reliability and internal consistency (Chronbach's alpha 0.990), face, content and construct validity. Five subscales measure Emotional Health needs (33 items, 19.4% of variance), Access and Continuity of Care (22 items, 15.1%), Relationships (15 items, 12.1%), Financial Concerns (11 items, 10.3%) and Information needs (eight items, 8.1% of the variance).This instrument has strong psychometric properties and is useful for determining the prevalence and predictors of cancer survivors' unmet needs across types of cancer, length of survivorship and socio-demographic characteristics. Use of the SUNS will enable more effective targeting of programmes and services and guide policy and health planning decisions.This study is an important step toward evidence-based planning and management of problems which the growing survivor population requires assistance in managing.