Psychosocial Challenges Experienced by Partners of People With Parkinson Disease
Psychosocial Challenges Experienced by Partners of People With Parkinson Disease
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DOI：
10.1097/jnn.0000000000000141
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发表时间：
2015-08-01
影响因子：
2.3
通讯作者：
Martin, Summer Carnett
中科院分区：
文献类型：
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作者：
Martin, Summer Carnett
尽管研究人员已经研究了与伴侣照顾帕金森病患者（PWP）相关的问题，但很少有人探索伴侣更广泛的社会心理体验。为了调查这一未被充分开发的领域，我们与23家工务计划的合作伙伴进行了个别的深入访谈。参与者报告了重大的社会心理挑战，包括残疾人退出交流、无法拯救残疾人、成为残疾人挫折的接受者、对残疾人表现出不耐烦、承担更多的责任、面临可能失去残疾人、失去有价值的活动、感到足不出户、无法预测残疾人的日常生活状况、以及对未来照顾和疾病进展感到不确定。这些结果表明，作为残疾人的伴侣，涉及到与照顾和非照顾问题相关的严重、复杂的社会心理挑战。这项研究强调了以家庭为中心的帕金森护理方法的必要性，并提供了有价值的见解，可以为这一人群的干预和护理实践提供信息。
Although researchers have examined issues related to partners providing care for a person with Parkinson disease (PWP), few have explored partners' broader psychosocial experiences. To investigate this underexplored area, individual, in-depth interviews with 23 partners of PWPs were conducted. Participants reported significant psychosocial challenges, including having the PWP withdraw from communication, being unable to rescue the PWP, being the recipient of the PWP's frustration, expressing impatience with the PWP, shouldering increased responsibility, being confronted with possibly losing the PWP, losing valued activities, feeling housebound, being unable to predict the PWP's daily well-being, and experiencing uncertainty about future caregiving and disease progression. These results indicate that being the partner of a PWP involves serious, complex psychosocial challenges related to both caregiving and noncaregiving issues. This research highlights the need for a family-centered approach to Parkinson care and provides valuable insight that can inform interventions and nursing practice for this population.