Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals

Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals
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DOI:
10.1016/s0277-9536(02)00028-x
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发表时间:
2003-01-01
影响因子:
5.4
通讯作者:
Angermeyer, MC
Angermeyer, MC
中科院分区:
医学2区
文献类型:
--
作者:
Schulze, B;Angermeyer, MC

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精神分裂症被认为是最令人耻辱的疾病之一。到目前为止,大部分有关精神病污名的研究,都是从公众态度或类似行为的研究中,得出精神分裂症患者所面对的不良反应的结论。然而,那些受到污名化反应的人的观点在很大程度上是不存在的。为了从精神分裂症患者的主观角度探讨污名化问题,在德国参加WPA消除精神分裂症污名化和歧视全球方案的四个中心进行了一项焦点小组研究。为了全面了解污名如何影响精神分裂症患者的生活,从亲属和精神卫生专业人员那里获得了间接信息。焦点小组询问其他两组病人遭受污名化的具体经历和目睹污名化的发生率。焦点小组会议录音和文字使用归纳法编码。结果显示,四个方面的耻辱:人际交往,结构性歧视,公众形象的精神疾病和获得的社会角色。举例说明了病人、亲属和精神卫生专业人员对四种污名类型的看法。的耻辱和发展的有效策略,以减少耻辱和歧视,因为精神分裂症的概念化的后果进行了讨论。(C)2002爱思唯尔科技有限公司版权所有。
Schizophrenia has been found to be one of the most stigmatising conditions. To the present, most research on stigma related to mental illness has drawn conclusions on the adverse reactions faced by people with schizophrenia from studies on public attitudes or analogue behavioural studies. The views of those exposed to the stigmatising reactions, however, has largely been absent. Aiming to explore stigma from the subjective perspective of people with schizophrenia, a focus group study was carried out at the four centres involved in the WPA Global Programme against Stigma and Discrimination because of Schizophrenia in Germany. In order to get a comprehensive picture of how stigma affects the lives of schizophrenic patients, collateral information was sought from relatives and mental health professionals. The focus groups enquired about concrete stigmatisation experiences of the patients and incidences of stigma witnessed by the other two groups. Focus group sessions were tape-recorded and transcripts were coded using an inductive method. Results reveal four dimensions of stigma: interpersonal interaction, structural discrimination, public images of mental illness and access to social roles. Examples are given for the views of patients, relatives and mental health professionals on each of the four stigma types. The consequences for conceptualisations of stigma and the development of effective strategies to reduce stigma and discrimination because of schizophrenia are discussed. (C) 2002 Elsevier Science Ltd. All rights reserved.