Trends in paediatric home parenteral nutrition and implications for service development
Trends in paediatric home parenteral nutrition and implications for service development
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DOI：
10.1016/j.clnu.2011.02.003
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发表时间：
2011-08-01
影响因子：
6.3
通讯作者：
Puntis, J. W. L.
中科院分区：
文献类型：
--
作者：
Beath, S. V.;Gowen, H.;Puntis, J. W. L.
背景与目的：在过去的20年里，儿童家庭肠外营养（HPN）服务的需求不断增加。为制定区域层面的护理策略，我们于2010年2月开展了一项全国性的HPN患病率调查。方法：从英国儿科胃肠病学、肝病学和营养学会会员和英国肠衰竭调查（BIFS）中筛选出33家已知提供HPN服务的医院的儿科胃肠病学家。匿名数据由BIFS管理员整理，并将结果与1993年英国儿科监测单位进行的类似研究进行比较。使用2006- 2009年BIFS数据库对基础诊断的趋势进行了探讨。结果：报告了139例HPN儿童：自1993年以来增加了4倍：其中6例年龄超过16岁。HPN的区域点患病率从1.76/100万到41.4/100万不等，平均为13.7/100万。短肠综合征从27%增加到63%cases.Conclusions：HPN患者数量的整体大幅增加表明，需要制定一项国家战略来管理慢性IF。(C)2011年爱思唯尔有限公司和欧洲临床营养与代谢学会。All rights reserved.
Background & aims: The demand for home parenteral nutrition (HPN) services for children has risen over the past 20 years. To plan a strategy for delivery of care at regional level, we carried out a national point prevalence survey of HPN during February 2010.Methods: Paediatric gastroenterologists in 33 hospitals known to have provided HPN services were identified from their membership of the British Society of Paediatric Gastroenterology, Hepatology and Nutrition and participation in the British Intestinal Failure Survey (BIFS). Anonymised data were collated by the BIFS administrator and results compared with a similar study performed by the British Paediatric Surveillance Unit in 1993. Trends in underlying diagnosis were explored using the BIFS database for 2006-2009.Results: 139 children on HPN were reported: a fourfold increase since 1993: six of these were older than 16 years. The regional point prevalence of HPN varied from 1.76 to 41.4 per million, with a mean of 13.7 patients per million. Short bowel syndrome had increased from 27% to 63% of cases.Conclusions: The large overall increase in numbers of HPN patients suggests that a national strategy needs to be developed for the management of chronic IF. (C) 2011 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.