A cluster-randomised controlled trial of a patient-centred guidebook for patients with ulcerative colitis: effect on knowledge, anxiety and quality of life
A cluster-randomised controlled trial of a patient-centred guidebook for patients with ulcerative colitis: effect on knowledge, anxiety and quality of life
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DOI：
10.1046/j.1365-2524.2003.00399.x
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发表时间：
2003-01-01
影响因子：
2.4
通讯作者：
Wilkin, D
中科院分区：
文献类型：
--
作者：
Kennedy, A;Robinson, A;Wilkin, D
进行了一项随机对照试验，以评估以患者为中心的循证指南对溃疡性结肠炎患者的知识、焦虑和生活质量 (QoL) 的影响。书中的信息是与患者密切合作开发的，重点关注他们确定的需求。研究中的所有 240 名受试者都接受了溃疡性结肠炎的长期随访，并有效负责社区中病情的日常管理。在 1 个月和 9 个月时测量结果。患者在六家医院就诊：三家医院被随机作为对照地点；其中三个是干预中心，向患者提供一本指南。结果显示，与对照组患者相比，接受指南的患者在 1 个月时表现出对溃疡性结肠炎的了解明显更好，并持续到 9 个月。焦虑和生活质量评分自始至终没有变化。作者得出的结论是，适当的信息是让患者更多地参与慢性病管理的重要先决条件。以患者为中心的信息可以在不增加焦虑的情况下增加知识，并应通过适当的医疗服务提供者向患者提供。
A randomised controlled trial was undertaken to evaluate the impact of a patient-centred, evidence-based guidebook on knowledge, anxiety and quality of life (QoL) in patients with ulcerative colitis. The information in the book was developed closely with patients and focused on their identified needs. All 240 subjects in the study were on long-term follow-up for ulcerative colitis and were effectively responsible for the day-to-day management of their condition in the community. Outcomes were measured at 1 month and 9 months. Patients attended outpatient clinics at six hospitals: three hospitals were randomised to be control sites; and three were intervention sites where patients were given a copy of the guidebook. The results showed that patients receiving the guidebook demonstrated significantly better knowledge of their ulcerative colitis at 1 month, which persisted at 9 months, than patients in the control group. Anxiety and QoL scores were unchanged throughout. The present authors conclude that appropriate information is an essential prerequisite to greater patient involvement in chronic disease management. Patient-centred information increases knowledge without increasing anxiety and should be made available to patients through an appropriate health provider.