CBTRUS Statistical Report: Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2007-2011
CBTRUS Statistical Report: Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2007-2011
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DOI：
10.1093/neuonc/nou327
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发表时间：
2014-10-01
期刊：
影响因子：
15.9
通讯作者：
Barnholtz-Sloan, Jill
中科院分区：
文献类型：
--
作者：
Ostrom, Quinn T.;Gittleman, Haley;Barnholtz-Sloan, Jill
CBTRUS是目前美国唯一一个与公共癌症监测组织CDC的NPCR合作的以人群为基础的特定地点登记处，并且根据特别协议直接接收数据。该协议允许通过国家中央登记癌症监测系统（NPCR-CSS）提交规范机制转移数据。CBTRUS研究人员将NPCR数据与NCI SEER项目1的数据相结合，该项目是在20世纪70年代初为国家癌症监测而建立的。来自NPCR和SEER的所有数据均来自肿瘤登记机构，这些登记机构遵守北美癌症登记协会（NAACCR）指导的恶性和非恶性脑和CNS肿瘤统一数据标准（UDS）（http：//www.npc.org/npc.org/npc.org/npc.org/）。纳克拉赫org）。沿着UDS，还有质量控制检查和对每个中央登记中心进行评级的系统，以进一步确保这些数据尽可能准确和完整地报告。因此，作为监测合作伙伴，CBTRUS可以报告高质量的脑和中枢神经系统肿瘤数据，这些数据具有组织学特异性，对它所服务的社区有用。其数据库代表了美国原发性脑和CNS肿瘤发病率的最大人群数据集合。
BackgroundCBTRUS is currently the only population-based site-specific registry in the US that works in partnership with a public cancer surveillance organization, the CDC's NPCR, and from which data are directly received under a special agreement. This agreement permits transfer of data through the National Program of Central Registries Cancer Surveillance System (NPCR-CSS) Submission Specifications mechanism. CBTRUS researchers combine the NPCR data with data from the SEER program 1 of the NCI, which was established for national cancer surveillance in the early 1970s. All data from NPCR and SEER originate from tumor registrars who adhere to the Uniform Data Standards (UDS) for malignant and non-malignant brain and CNS tumors as directed by the North American Association of Cancer Registries (NAACCR)(http://www. naaccr. org). Along with the UDS, there are quality control checks and a system for rating each central registry to further insure that these data are reported as accurately and completely as possible. As a surveillance partner, CBTRUS can, therefore, report high quality data on brain and CNS tumors with histological specificity useful to the communities it serves. Its database represents the largest aggregation of population-based data on the incidence of primary brain and CNS tumors in the US.