HOME MANAGEMENT OF SICKLE CELL-RELATED PAIN IN CHILDREN AND ADOLESCENTS - NATURAL-HISTORY AND IMPACT ON SCHOOL ATTENDANCE
HOME MANAGEMENT OF SICKLE CELL-RELATED PAIN IN CHILDREN AND ADOLESCENTS - NATURAL-HISTORY AND IMPACT ON SCHOOL ATTENDANCE
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DOI：
10.1016/0304-3959(94)00164-a
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发表时间：
1995-04-01
期刊：
影响因子：
7.4
通讯作者：
ORNE, MT
中科院分区：
文献类型：
--
作者：
SHAPIRO, BS;DINGES, DF;ORNE, MT
一些患有镰状细胞病的儿童和青少年经常经历疼痛发作。为了获得有关疼痛自然史及其对睡眠和上学影响的信息，我们开发了一个家庭日记系统。 18 名儿童和青少年完成了 4756 个日记日，平均遵守率为 75%。 30% 的日子里有疼痛报告，十分之九的时间在家中进行治疗。女孩报告的疼痛天数比男孩多，而且年龄与疼痛发作的时间长短呈正相关。疼痛影响了上学和睡眠。在 3186 个教学日中，有 21% 的患者缺勤，其中一半缺勤是在报告疼痛的日子里。在与疼痛相关的缺勤中，三分之二发生在在家处理疼痛时，三分之一发生在患者住院时。平均连续旷课天数为 2.7 天。这些发现对发育关键活动具有影响。
Some children and adolescents with sickle cell disease experience frequent painful episodes. To gain information about the natural history of the pain and its impact on sleep and school attendance, we developed a home-based diary system. Eighteen children and adolescents completed 4756 diary days, with an average compliance of 75%. Pain was reported on 30% of days and was managed at home nine-tenths of the time. Girls reported more days with pain than did boys, and age was positively correlated with the length of the painful episodes. The pain affected school attendance and sleep. Patients were absent from school on 21% of 3186 school days, with half of the absenteeisms on days with reported pain. Of the pain-associated absenteeisms, two-thirds occurred when pain was managed at home, and one-third when patients were hospitalized. The average consecutive number of school days missed was 2.7. These findings have implications for developmentally critical activities.