Parental self-efficacy managing a child's medications and treatments: adaptation of a PROMIS measure.
Parental self-efficacy managing a child's medications and treatments: adaptation of a PROMIS measure.
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DOI：
10.1186/s41687-023-00549-z
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发表时间：
2023-02-03
影响因子：
2.7
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中科院分区：
文献类型：
--
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自我效能对于管理慢性病很重要;然而，在儿科医疗环境中对其进行测量仍然很少见。该项目的目标是适应现有的疾病不可知的成人自我效能患者报告的结果（PRO）的措施，以提高项目的适用性，以衡量自我效能的父母，管理他们的孩子的健康状况。我们将现有的患者报告结局测量信息系统（PROMIS®）成人自我效能医疗保健措施调整为父母的声音。首先，有针对性的文献综述告知成人项目的重新措辞和新的儿科特定内容的识别。根据12名多学科专家的意见，对最初的项目库进行了修订。接下来的认知访谈的适应项目，同时进行了英语和西班牙语为母语的父母的儿科患者的一系列慢性和/或致残条件从中西部儿童医院招募，以最终确定的措施。调查结果产生了33个儿科特定项目的初始项目池，根据专家输入缩小到31个草案项目。父母的认知访谈结果（N = 26）通知进一步项目减少，最终措施包括30个项目，代表9个领域。14个项目与儿童相关，无论病情严重程度如何（例如，卫生保健信息/决策;症状识别/管理）和16个项目与具有特定卫生保健需求的儿童相关（例如，药物使用，设备）。我们进行了第一步，在开发一个条件不可知的，PRO措施的父母自我效能管理他们的孩子的慢性和/或残疾的条件是可以接受的，可以理解的英语和西班牙语的父母。在线版本包含补充材料，可通过10.1186/s41687-023-00549-z获得。自我效能感是一个人完成任务的信心，对于管理慢性健康状况很重要。了解父母管理其子女健康状况的自我效能可能是支持其子女健康的重要一步，但没有单一的措施可用于各种不同的条件。在本文中，我们提出了一个新的病人报告的结果测量的发展，旨在评估自我效能的父母管理他们的孩子的慢性和/或残疾的条件。我们发现，这项措施是可以接受的，可以理解的英语和西班牙语的人，并可能是有用的，以积极主动地确定在出院或在一个新的诊断时需要额外的支持父母。在线版本包含补充材料，可通过10.1186/s41687-023-00549-z获得。
Self-efficacy is important for managing chronic conditions; however, its measurement in pediatric healthcare settings remains rare. The goal of this project was to adapt an existing disease-agnostic adult self-efficacy patient reported outcome (PRO) measure to enhance suitability of items for measuring the self-efficacy of parents that manage their children’s health conditions. We adapted the existing Patient-Reported Outcomes Measurement Information System® (PROMIS®) adult self-efficacy healthcare measure to parental voice. First, a targeted literature review informed rephrasing of the adult items and identification of new pediatric-specific content. The initial item pool was revised based on input from 12 multidisciplinary experts. Next cognitive interviews of adapted items were simultaneously conducted with English and Spanish-speaking parents of pediatric patients with a range of chronic and/or disabling conditions recruited from a Midwestern children’s hospital to finalize the measure. Findings resulted in an initial item pool of 33 pediatric-specific items which were narrowed to 31 draft items based on expert input. Parent cognitive interview findings (N = 26) informed further item reduction resulting in a final measure consisting of 30 items representing nine domains. Fourteen items are relevant to children regardless of condition severity (e.g., health care information/decision making; symptom identification/management) and 16 items are relevant to children with specific health care needs (e.g., medication usage, equipment). We conducted a first step in developing a condition-agnostic, PRO measure of parental self-efficacy managing their children’s chronic and/or disabling conditions that is acceptable and understandable to English and Spanish-speaking parents. The online version contains supplementary material available at 10.1186/s41687-023-00549-z. Self-efficacy, which is someone’s confidence in completing a task, is important for managing a chronic health condition. Knowing parents’ self-efficacy managing their children’s health conditions may be an important step in supporting their children’s health but no single measure is available for diverse sets of conditions. In this paper, we present the development of a new patient reported outcomes measure designed to assess self-efficacy of parents managing their child’s chronic and/or disabling conditions. We found that the measure is both acceptable and understandable to English and Spanish speakers and may be useful to proactively identify parents in need of additional supports at hospital discharge or at the time of a new diagnosis. The online version contains supplementary material available at 10.1186/s41687-023-00549-z.
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影响因子：
2.2
作者：
Kang, Lin-Ju;Palisano, Robert J.;Chiarello, Lisa A.
通讯作者：
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影响因子：
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