Advocating for in-center hemodialysis patients via anonymous survey.
Advocating for in-center hemodialysis patients via anonymous survey.
复制标题
DOI：
10.1097/md.0000000000030937
复制
发表时间：
2022-10-14
期刊：
影响因子：
1.6
通讯作者：
中科院分区：
文献类型：
--
作者：
我们在我们大学附属的9个门诊透析单元进行了一项匿名调查，以解决许多中心血液透析患者可能不愿与人分享他们的经验的担忧。这项研究的主要目标：调查患者对其护理的满意度；评估患者对其疾病及其管理相关问题的了解程度的主观感知；确定改善护理的潜在途径。调查以英语进行，以纸面为基础，对患者满意度的个别问题进行回答选择，并使用5分Likert量表对教育进行评级。关于潜在的改善领域，患者被要求选择尽可能多的被认为合适的领域。为了确保匿名，完成的调查被折叠并放进一个盒子里。总体而言，516名筛查患者中有253名(49%)符合条件并完成了调查。患者对血液透析的满意度(14个问题中每一个平均评分 >； 4)和教育(8个问题平均评分 >； 4，2个问题 >； 3.5)表示满意。大约62%的总体研究参与者确定了至少一个他们认为额外信息将导致护理改善的领域。结果显示，门诊血液透析患者总体满意度较高，对自身健康状况有较好的认知。根据患者的意见，专注于解决疼痛和不适、隐私、提供关于姑息治疗/临终关怀的信息、心理健康资源和肾移植过程的策略可能会促进整体护理质量的提高。
We conducted an anonymous survey in 9 of our university affiliated outpatient dialysis units to address the concern that many in-center hemodialysis patients may not feel comfortable sharing their experiences. Major goals of this study: Investigating level of patient satisfaction with their care; Evaluating the subjective perception of the level of understanding of patients regarding pertinent issues of their disease and its management; Identifying potential avenues for care improvement. Survey was conducted in English, paper-based, with answer choices to individual questions for patient satisfaction and education graded using a 5-point Likert scale. Regarding potential areas of improvement, patients were asked to choose as many areas as deemed appropriate. To ensure anonymity, the completed surveys were folded and dropped into a box. Overall, 253 out of 516 (49%) screened patients were eligible and completed the survey. Patients expressed favorable responses regarding satisfaction (mean rating > 4 in each of 14 questions) and education (mean rating > 4 in 8 questions, > 3.5 in 2 questions) regarding hemodialysis. About 62% of overall study participants identified at least one area where they felt additional information would result in improvement of care. Our results indicate that patients undergoing outpatient hemodialysis were overall satisfied and had a good perceptive understanding about their health. Based on the patients’ input, strategies focused on addressing pain and discomfort, privacy, providing information about palliative care/hospice, mental health resources, and the process of kidney transplantation may promote improvement in overall quality of care.