Ostomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review.
Ostomy-related problems and their impact on quality of life of colorectal cancer ostomates: a systematic review.
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DOI：
10.1007/s11136-015-1050-3
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发表时间：
2016-01
期刊：
影响因子：
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通讯作者：
Schuurmans MJ
中科院分区：
文献类型：
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作者：
Vonk-Klaassen SM;de Vocht HM;den Ouden ME;Eddes EH;Schuurmans MJ
许多长期的造口者被医疗保健“忽视”了，并且尚不清楚造口者如何处理造口相关问题以及这些问题如何影响他们的生活质量（QOL）。目的是检查描述造口相关问题的患者相关研究及其对长期结肠造口患者感知生活质量的影响。系统检索PubMed （MEDLINE）、CINAHL、Cochrane Library和PsycINFO等电子数据库。所有研究均采用经验证的多维仪器测量造口特异性生活质量。在确定的6447个引用中，包括14个主要描述性横断面研究。采用三种不同的多维度仪器（EORTC C30/CR38、MCOHQOLQO、Stoma QOL Questionnaire）测量气孔质量。所有研究都表明，结肠造口术对总体生活质量有负面影响。与造口术相关的问题包括性问题、抑郁情绪、胀气、便秘、对外表不满、换装、旅行困难、感觉疲劳和担心噪音。总之，所有14项研究都指出了造口相关问题对感知生活质量的影响，并表明造口对生活质量有负面影响。造口特异性生活质量评分的范围很广，在使用MCOHQOLQO仪器的研究中，生活质量评分似乎更高。MCOHQOLQO和Stoma QOL问卷提供了最详细的关于所经历的造口相关问题的信息。这篇综述增加了关于造口相关问题对长期造口患者生活质量影响的知识，但还需要进行更多的研究，以发现造口相关问题，特别是可能的护理需求。本文的在线版本（doi:10.1007/s11136-015-1050-3）包含补充材料，授权用户可使用。
Many long-term ostomates are ‘out-of-sight’ of healthcare, and it is unknown how ostomates deal with ostomy-related problems and how these problems affect their quality of life (QOL). The aim is to examine patient-related studies describing ostomy-related problems and their impact on the perceived QOL of long-term colostomates. The electronic databases PubMed (MEDLINE), CINAHL, Cochrane Library and PsycINFO were systematically searched. All studies were included in which ostomy-specific QOL was measured using validated multidimensional instruments. Of the 6447 citations identified, 14 prevailingly descriptive cross-sectional studies were included. Three different validated multidimensional instruments for measuring QOL in ostomates were used (EORTC C30/CR38, MCOHQOLQO, Stoma QOL Questionnaire). All studies demonstrated that living with a colostomy influences the overall QOL negatively. The ostomy-related problems described included sexual problems, depressive feelings, gas, constipation, dissatisfaction with appearance, change in clothing, travel difficulties, feeling tired and worry about noises. In conclusion, all 14 studies gave an indication of the impact of ostomy-related problems on the perceived QOL and demonstrated that a colostomy influences the QOL negatively. There is a wide range of ostomy-specific QOL scores, and there seem to be higher QOL scores in the studies where the MCOHQOLQO instrument was used. The MCOHQOLQO and the Stoma QOL Questionnaire gave the most detailed information about which ostomy-related problems were experienced. This review adds knowledge about the impact of stoma-related problems on QOL of long-term ostomates, but more research has to be conducted, to detect ostomy-related problems and especially possible care needs. The online version of this article (doi:10.1007/s11136-015-1050-3) contains supplementary material, which is available to authorized users.