Ethical issues in mental health research: the case for community engagement

Ethical issues in mental health research: the case for community engagement
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DOI:
10.1097/yco.0b013e3283459422
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发表时间:
2011-05-01
影响因子:
6.9
通讯作者:
Stevenson, Richard D.
Stevenson, Richard D.
中科院分区:
医学2区
文献类型:
--
作者:
DuBois, James M.;Bailey-Burch, Brendolyn;Stevenson, Richard D.

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审查目的描述社区参与研究 (CEnR) 以及它如何提高研究质量,同时解决社区对心理健康和药物滥用研究可能存在的伦理问题。本文包括对文献的回顾以及由美国国家心理健康研究所资助召集的专家小组的建议。最近的发现CEnR代表了广泛的实践,包括在机构伦理委员会中的代表、对研究人群中的个人进行态度研究、参与社区咨询委员会、与社区组织建立研究伙伴关系以及让社区成员作为共同研究者。总结CEnR提出了一些挑战;例如,它需要为研究人员和社区成员提供资金和培训。然而,它为研究人员和社区提供了许多好处,并且某种形式的 CEnR 在几乎所有涉及人类参与者的研究中都是适当且可行的。
Purpose of reviewTo describe community-engaged research (CEnR) and how it may improve the quality of a research study while addressing ethical concerns that communities may have with mental health and substance abuse research. This article includes a review of the literature as well as recommendations from an expert panel convened with funding from the US National Institute of Mental Health.Recent findingsCEnR represents a broad spectrum of practices, including representation on institutional ethics committees, attitude research with individuals from the study population, engaging community advisory boards, forming research partnerships with community organizations, and including community members as co-investigators.SummaryCEnR poses some challenges; for example, it requires funding and training for researchers and community members. However, it offers many benefits to researchers and communities, and some form of CEnR is appropriate and feasible in nearly every study involving human participants.