USING ADMINISTRATIVE DATA FOR LONGITUDINAL RESEARCH - COMPARISONS WITH PRIMARY DATA-COLLECTION

USING ADMINISTRATIVE DATA FOR LONGITUDINAL RESEARCH - COMPARISONS WITH PRIMARY DATA-COLLECTION
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DOI:
10.1016/0021-9681(87)90095-6
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发表时间:
1987-01-01
期刊:
JOURNAL OF CHRONIC DISEASES
影响因子:
--
通讯作者:
CAGEORGE, SM
CAGEORGE, SM
中科院分区:
其他
文献类型:
--
作者:
ROOS, LL;NICOL, JP;CAGEORGE, SM

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本文讨论了使用行政数据进行纵向研究的优点和缺点,重点是失访。研究之间的比较依赖于原始数据收集和使用数据库。在制定了一个适当的框架后,将几个基于原始数据收集的著名项目(七国冠心病项目、马萨诸塞州长期护理研究和匹兹堡扁桃体切除术临床试验)的随访与加拿大马尼托巴卫生服务委员会数据库的随访进行比较。马尼托巴研究的总体随访率与基于原始数据收集的其他研究的参与率和随访率相比是有利的。最初的无响应和nonlocation的主要问题与使用原始数据的研究,未能找到较早的受访者在随后的波结果在广泛的整体响应率。数据库不要求研究人员与个人联系,因此简化了后续工作。马尼托巴数据库中的8年随访率几乎总是超过80%,经常超过90%。由于记录可以灵活地总结每个人随着时间的推移,数据库方便某些类型的纵向研究,这将是困难的,如果不是不可能的,使用其他方法进行。如果所需的数据是可用的,并以可接受的准确性记录,行政数据库持有相当大的承诺,为卫生保健研究。
This paper discusses the advantages and disadvantages of using administrative data for longitudinal research, focusing on loss to follow-up. Comparisons between research relying on primary data collection and that using data bases are made. After development of a suitable framework, follow-up in several well-known projects based on primary data collection (the Seven Countries project on coronary heart disease, the Massachusetts research on long-term care and the Pittsburgh clinical trial of tonsillectomy) is compared with follow-up using the Heath Services Commission data base in Manitoba, Canada. Overall follow-up in the Manitoba research compres favorably with participation and follow-up rates in other studies based on primary data collection. Initial nonresponse and nonlocation are major problems with studies using primary data; failure to locate earlier respondents in subsequent waves results in a wide range of overall response rates. Data bases do not require researchers to contact individuals and hence follow-up is simplified. Eight year follow-up rates in the Manitoba data base are almost always over 80% and often over 90%. Because records can be flexibly summarized for each individual over time, data bases facilitate certain types of longitudinal studies which would be difficult, if not impossible, to perform using other methodologies. If the desired data are available and recorded with acceptable accuracy, administrative data banks hold considerable promise for the health care research.