HIV normalization message and its implication on the lives of perinatally HIV-infected youth in Puerto Rico.
HIV normalization message and its implication on the lives of perinatally HIV-infected youth in Puerto Rico.
复制标题
DOI：
10.1111/jphs.12194
复制
发表时间：
2017-12
期刊：
影响因子：
--
通讯作者：
Zorrilla CD
中科院分区：
文献类型：
--
作者：
Silva-Suárez G;Rabionet SE;Zorrilla CD
研究艾滋病毒正常化话语对波多黎各一组围产期艾滋病毒感染（pHIV-I）青年生活的影响。进行了一项定性研究，以探讨生活经验的pHIV-I青年在波多黎各。对18至30岁的12名妇女和8名男子进行了20次深入访谈。问题主要集中在他们的生活经历和他们赋予艾滋病毒的意义。访谈进行了分析和相互关系，连接和模式进行了评估。正常化信息出现在大多数参与者的叙述中。大多数人认为他们的艾滋病毒诊断与“任何其他健康状况”一样，他们中的大多数人对生活持积极态度。当研究参与者从社会角度定位自己时，正常化信息的矛盾出现了。一些与会者报告说，由于艾滋病毒受到高度污名化，他们的排斥、歧视和污名经历与其他慢性病患者不同。艾滋病毒感染者还面临着独特和困难的情况，例如失去家庭成员，应对可能致命的疾病，以及对自己的健康状况保密。虽然正常化的话语在医疗领域非常普遍，但它不一定转化为艾滋病毒阳性青年的个人和社会领域。仍然需要采取干预措施，帮助患者应对艾滋病毒状况的社会影响。
To examine the impact of the HIV normalization discourse on the life of a group of perinatally HIV-infected (pHIV-I) youth in Puerto Rico. A qualitative research study was conducted to explore the life experiences of pHIV-I youth in Puerto Rico. Twenty in-depth interviews were carried out among 12 women and eight men aged 18 to 30 years. Questions focused primarily on their life experiences and the meaning they ascribe to HIV. Interviews were analyzed and interrelationships, connections and patterns were assessed. Normalization messages were present in most of the participants’ narratives. The majority considered their HIV diagnosis like “any other health condition” and most of them had a positive attitude towards life. When study participants positioned themselves from a social perspective, contradictions of normalization messages emerged. Some participants reported that because HIV is highly stigmatized, their rejections, discrimination and stigma experiences are different from those of patients with other chronic conditions. Those with HIV also face unique and difficult situations such as losing family members, dealing with a potentially fatal illness, and maintaining secrecy about their health conditions. While the normalization discourse is very common in the medical field, it does not necessarily translate into the personal and social spheres of HIV-positive youth. Interventions to assist patients in dealing with the social implications of the HIV condition are still needed.