Parenting Children with Disorders of Sex Development (DSD): A Developmental Perspective Beyond Gender.
Parenting Children with Disorders of Sex Development (DSD): A Developmental Perspective Beyond Gender.
复制标题
养育患有性发育障碍（DSD）的孩子：超越性别的发展视角。
DOI：
10.1055/s-0034-1398561
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发表时间：
2015
期刊：
影响因子：
--
通讯作者：
Sandberg,DE
中科院分区：
文献类型：
--
作者：
Wisniewski,AB;Sandberg,DE
针对特定病症的治疗方法的进步有助于对影响儿童的慢性疾病采取分类心理学方法。共识声明和临床指南认识到与性发育障碍（DSD）患者及其护理人员相关的压力-但仍有很多关于受影响儿童及其家庭的社会适应，心理健康和生活质量的研究。我们目前的初步数据的心理社会共病的照顾者的儿童与DSD，包括耻辱，孤立，压力，焦虑和抑郁症。提供的证据支持根据以下变量为家庭提供个性化的心理方法：1）照顾者的性别，2）受影响儿童的性别和3）出生时存在生殖器模糊性。发展可行的，有针对性的干预措施，以改善照顾者之间的心理社会共病是必要的，以优化社会调整，心理健康和健康相关的生活质量（HRQoL）与DSD儿童。
Advances in therapeutics for specific conditions have contributed to a categorical psychological approach to chronic diseases that affect children. Consensus statements and clinical guidelines recognize stress associated with disorders of sex development (DSD) for patients and their caregivers – yet much remains to be learned concerning the social adjustment, mental health, and quality of life of affected children and their families. We present preliminary data on the psychosocial comorbidities of caregivers of children with DSD, including stigma, isolation, stress, anxiety, and depressive symptomatology. Evidence is offered in support of individualized psychological approaches for families according to such variables as: 1) gender of the caregiver, 2) gender of the affected child and 3) presence of genital ambiguity at birth. Development of feasible, targeted interventions to ameliorate psychosocial comorbidities among caregivers is needed to optimize social adjustment, mental health, and health-related quality of life (HRQoL) for children with DSD.