Photovoice as a tool to improve patient-Provider communication in inflammatory bowel disease clinic: A feasibility study.
Photovoice as a tool to improve patient-Provider communication in inflammatory bowel disease clinic: A feasibility study.
复制标题
光电语音作为改善炎症性肠病诊所患者与提供者沟通的工具：可行性研究。
DOI：
10.1111/jep.13609
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发表时间：
2021
影响因子：
2.4
通讯作者：
Keefer,Laurie
中科院分区：
文献类型：
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作者：
Gorbenko,KseniaO;Riggs,AlexaRae;Koeppel,Brooke;Phlegar,Sydney;Dubinsky,MarlaC;Ungaro,Ryan;Keefer,Laurie
炎症性肠病（IBD）患者的情绪健康对自我管理至关重要，但在常规护理中很难阐明。患者通常不确定如何以直接告知共同决策的方式将他们的偏好和担忧传达给他们的提供者。Photovoice是一种成熟的研究方法，用于通过摄影表达为弱势患者提供声音，但以前尚未用于胃肠病学或IBD。目的确定在IBD诊所使用Photovoice的可接受性和可行性。患者参与IBD患者对开放式提示进行拍照，参加焦点小组，并集思广益的方式来分享他们的经验与clinics.MethodsEnrolled IBD患者接受数码相机，培训的基本使用和10个开放式提示相关的管理他们的IBD。参与者完成了一个小时的深入采访他们的照片，这是音频记录和专业转录。三名分析员使用定性分析软件QSR NVivo 11对主题的转录本进行编码。一部分患者参加了一个焦点小组，讨论他们的Photovoice体验。胃肠病学家进行了采访，使用病人的照片作为提示，使用Photovoice在clinic.Results11例患者完成了采访，五个参与焦点小组的可行性进行评估。患者共分享和讨论了118张照片。我们确定了两个主要主题：疾病负担和医患沟通。五位IBD医生回顾了精选的患者照片，并提出了将Photovoice纳入临床实践的方法。DiscussionPhotovoice可能是IBD患者的可行方法，也是供应商在临床环境中使用的可接受方法。实用价值Photovoice可以帮助供应商识别患者关注的问题，并使他们的沟通更加以患者为中心。
BackgroundThe emotional health of patients with inflammatory bowel disease (IBD) is critical to self‐management, but has been difficult to elucidate in routine care. Patients are often unsure how to communicate their preferences and concerns to their providers in ways that could directly inform shared decision making. Photovoice is an established research methodology used to give vulnerable patients a voice through photographic expression, but has not been previously used in gastroenterology or in IBD.ObjectiveTo determine the acceptability and feasibility of using Photovoice in an IBD clinic.Patient involvementPatients with IBD took photos in response to open‐ended prompts, participated in a focus group, and brainstormed ways to share their experience with clinicians.MethodsEnrolled IBD patients received a digital camera, training on basic usage and 10 open‐ended prompts related to management of their IBD. Participants completed one‐hour in‐depth interviews about their photos, which were audio‐recorded and professionally transcribed. Three analysts coded transcripts for themes using qualitative analysis software QSR NVivo 11. A subset of patients participated in a focus group about their Photovoice experience. Gastroenterologists were interviewed, using patient photos as prompts, to evaluate feasibility of using Photovoice in the clinic.ResultsEleven patients completed the interviews, with five participating in the focus group. Patients shared and discussed a total of 118 photographs. We identified two major themes: disease burden and patient ‐ provider communication. Five IBD physicians reviewed select patient photos and suggested ways to incorporate Photovoice into clinical practice.DiscussionPhotovoice may be a feasible methodology for patients with IBD and acceptable for providers to use in a clinical setting.Practical valuePhotovoice may help providers identify patient concerns and make their communication more patient‐centred.