Measuring quality of life - Using quality of life measures in the clinical setting
Measuring quality of life - Using quality of life measures in the clinical setting
复制标题
DOI：
10.1136/bmj.322.7297.1297
复制
发表时间：
2001-05-26
影响因子：
--
通讯作者：
Carr, AJ
中科院分区：
文献类型：
--
作者：
Higginson, IJ;Carr, AJ
在现代医学中，评估患者变化的传统方法一直是专注于实验室或临床测试。最简单的做法是测量脉搏、血压和体温，并进行体检。在更复杂的层面上，它可能包括血液学分析、计算机断层摄影、放射摄影、器官功能测试、遗传分析和其他调查。虽然这些信息提供了有关疾病的重要信息，特别是关于慢性和进行性疾病的信息，但不可能将疾病与个人和社会背景分开。真空中不存在疾病。捕捉患者个人和社会背景的一种方法是使用生活质量测量。1这些在临床研究中被接受为结果衡量标准，但很少用于常规临床实践，尽管弗洛伦斯·南丁格尔是第一批坚持测量常规护理结果以评估治疗的临床医生之一。2本文回顾了在临床实践中使用生活质量测量的挑战，包括选择适当的测量、分析数据、提供反馈、解释结果，以及将这些测量纳入临床决策。解决的实际方法之间的紧张需要适用于临床遭遇和高度个性化的生活质量的性质也进行了审查。
In modern medicine the traditional way of assessing change in patients has been to focus on laboratory or clinical tests. At its most simple this involves measuring pulse, blood pressure, and temperature, and carrying out physical examinations. At more complex levels it may include haematological analysis, computed tomography, radiography, organ function tests, genetic analysis, and other investigations. While these give important information about the disease, especially about chronic and progressive diseases, it is impossible to separate disease from an individual’s personal and social context. No illness exists in a vacuum.One way of capturing the personal and social context of patients is to use quality of life measures. 1 These are accepted as outcome measures in clinical research but are rarely used in routine clinical practice, despite the fact that Florence Nightingale was one of the first clinicians to insist on measuring the outcome of routine care to evaluate treatment. 2 This article reviews the challenges of using quality of life measures in clinical practice including selecting appropriate measures, analysing data, providing feedback, interpreting results, and incorporating these measures into clinical decision making. Practical ways of resolving the tension between the need for approaches suitable in the clinical encounter and the highly individualised nature of quality of life are also examined.