Subjective health complaints in individuals with Ehlers-Danlos syndrome: A questionnaire study
Subjective health complaints in individuals with Ehlers-Danlos syndrome: A questionnaire study
复制标题
DOI：
10.1016/j.ijnurstu.2010.10.007
复制
发表时间：
2011-06-01
影响因子：
8.1
通讯作者：
Berglund, Britta
中科院分区：
文献类型：
--
作者：
Maeland, Silje;Assmus, Jorg;Berglund, Britta
工作背景：Ehlers-Danlos综合征（EDS）是一种遗传性结缔组织疾病，其中经常出现诸如超移动的关节、脆弱组织、出血倾向和慢性疼痛的症状。因此，功能disability.Objective：在本研究中，我们调查了主观健康投诉的患病率在瑞典EDS group.Design，参与者和方法：瑞典EDS协会的成员被邀请回答问卷主观健康投诉量表（SHCI）。在接受问卷调查的365名个体中，250名诊断为18岁以上的个体（平均年龄46.15岁; SD 12）做出了回答。整体回应率为68%（女性89.2%; n = 223）。结果：报告任何健康投诉的总人数为247人（99%）。整个组的平均投诉数量为16.1（SD 5.7）。报告的投诉为肌肉骨骼246例（98%），假神经241例（96%），胃肠道236例（94%），过敏182例（73%），流感样144例（58%）。240人（96%）报告了实质性投诉。妇女报告了显着较高的投诉数量，平均总SHC，每投诉的严重程度相比，男性和参考group. the Norwegian一般population.Conclusion：瑞典女性EDS有较高的数量和更实质性的健康投诉，如疲劳和不同的定位的疼痛比挪威一般人群。肌肉骨骼、假性神经和胃肠道疾病在高移动的EDS型患者中最常见。(C)2010爱思唯尔有限公司版权所有。
Background: Ehlers-Danlos syndrome (EDS) is an inherited connective tissue disorder where symptoms such as hyper mobile joints, fragile tissues, a bleeding tendency and chronic pain are frequent. Consequently, functional disability is common.Objective: In the present study we investigated the prevalence of subjective health complaints in a Swedish EDS group.Design, participants and method: Members of the Swedish EDS Association were invited to respond to the questionnaire Subjective Health Complaints Inventory (SHCI). Of the 365 individuals receiving questionnaires, 250 diagnosed individuals >18 years (mean age 46.15; SD 12) responded. The overall response rate was 68% (females 89.2%; n = 223).Results: The total number of persons reporting any health complaint was 247 (99%). The mean number of complaints was 16.1 (SD 5.7) in the whole group. The complaints reported were musculoskeletal by 246 (98%), pseudoneurological by 241 (96%), gastrointestinal by 236 (94%), allergic by 182 (73%) and influenza-like by 144 (58%) persons. Substantial complaints were reported by 240 (96%) persons. Women reported a significantly higher number of complaints, mean total SHC, and severity per complaint compared to men and the reference group; the Norwegian general population.Conclusion: Swedish females with EDS have higher number of and more substantial health complaints like tiredness and different localisations of pain than the compared Norwegian general population. Musculoskeletal, pseudoneurological and gastrointestinal complaints are most frequent in individuals with the hyper mobile EDS type. (C) 2010 Elsevier Ltd. All rights reserved.