One size does not fit all: the different experiences of those with chronic heart failure, type 2 diabetes and chronic obstructive pulmonary disease
One size does not fit all: the different experiences of those with chronic heart failure, type 2 diabetes and chronic obstructive pulmonary disease
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DOI：
10.1071/ah11092
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发表时间：
2013-01-01
影响因子：
1.8
通讯作者：
Leeder, Stephen R.
中科院分区：
文献类型：
--
作者：
Corcoran, Katherine J.;Jowsey, Tanisha;Leeder, Stephen R.
导论.澳大利亚联邦政府正在制定应对澳大利亚慢性病的政策。严重和持续疾病政策和实践研究调查了澳大利亚首都直辖区（ACT）和西悉尼慢性心力衰竭（CHF）、慢性阻塞性肺病（COPD）或2型糖尿病（糖尿病）患者的经验。本文介绍了疾病的具体经验的人采访。我们在2008年对40名45-85岁的CHF、COPD或糖尿病患者进行了半结构化访谈。访谈被记录和转录。采用QSR Nvivo 8定性数据分析软件进行定性含量分析。CHF参与者（n = 9）接受了不可预测的猝死的前景。患有COPD的参与者（n = 15）对它强加给他们生活的限制感到愤怒。糖尿病患者（n = 16）在自我管理方面经历了一个陡峭的学习曲线，周围环绕着高度的不确定性。虽然慢性病患者有许多共同的经历，但一个人与慢性病一起生活的总体经历受到其特定显性疾病的性质的影响。以病人为中心的护理政策必须考虑到一般因素和具体疾病因素。
Introduction. The Australian federal government is developing a policy response to chronic disease in Australia. The Serious and Continuing Illness Policy and Practice Study examined the experience of individuals with chronic heart failure (CHF), chronic obstructive pulmonary disease (COPD) or type 2 diabetes mellitus (diabetes) in the Australian Capital Territory (ACT) and Western Sydney. This paper describes the disease-specific experiences of people interviewed.Methods. We conducted semi-structured interviews with 40 individuals aged 45-85 years with CHF, COPD or diabetes in 2008. Interviews were recorded and transcribed. Qualitative content analysis was performed, assisted by QSR Nvivo 8 qualitative data software.Results. Participants with CHF (n = 9) came to terms with the prospect of unpredictable sudden death. Participants with COPD (n = 15) were angry about limitations it imposed on their lives. Participants with diabetes (n = 16) experienced a steep learning curve in self-management of their condition surrounded by high levels of uncertainty.Conclusion. Although people with chronic illness share many experiences, a person's overall experience of living with chronic illness is significantly shaped by the nature of their specific dominant disease. Policies for patient-centred care must take account of both generic and disease-specific elements.