Adapters, Strugglers, and Case Managers: A Typology of Spouse Caregivers
Adapters, Strugglers, and Case Managers: A Typology of Spouse Caregivers
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DOI：
10.1177/1049732314548879
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发表时间：
2014-11-01
影响因子：
3.2
通讯作者：
Gilliss, Catherine L.
中科院分区：
文献类型：
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作者：
Davis, Linda Lindsey;Chestnutt, Deborah;Gilliss, Catherine L.
虽然家庭家庭护理问题经常在卫生保健文献中描述，但家庭和其他非正式照顾者处理这些问题的方式往往没有得到解决。我们对访谈进行了描述性分析，在访谈中，照顾患有阿尔茨海默病或帕金森病的伴侣的配偶被要求描述困难的家庭护理问题以及他们如何处理这些问题。对这些访谈的分析表明了三种反复出现的管理风格。适应者讲述了如何运用已有的技能来管理家庭护理问题的故事。挣扎者讲述了反复出现的家庭护理问题，他们很少或根本没有管理策略。个案经理的访谈故事集中在寻找和协调家庭护理服务的挑战。研究结果提示，照顾者的管理方式对照顾负担的影响大于照顾环境的需求。针对这三种类型的照顾者提出了针对性的支持方案建议。
Although family home care problems are frequently described in the health care literature, the ways in which families and other informal caregivers manage those problems are not often addressed. We conducted a descriptive analysis of interviews in which spouses caring for a partner with Alzheimer's or Parkinson's disease were asked to describe difficult home care problems and how they managed those problems. Analysis of these interviews indicated three recurring management styles. Adapters told stories about applying pre-existing skills to manage home care problems. Strugglers told stories of reoccurring home care problems for which they had few or no management strategies. Case managers' interview stories focused on the challenges of finding and coordinating home care services. These findings suggest that caregiving burden might be influenced more by the caregiver's management style than the demands of the care situation. Suggestions for tailoring support programs for the three types of caregivers are proposed.