Hmong Older Adults' Perceptions of Insider and Outsider Researchers: Does It Matter for Research Participation?
Hmong Older Adults' Perceptions of Insider and Outsider Researchers: Does It Matter for Research Participation?
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DOI：
10.1097/nnr.0000000000000277
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发表时间：
2018-05-01
期刊：
影响因子：
2.5
通讯作者：
Bowers, Barbara J.
中科院分区：
文献类型：
--
作者：
Lor, Maichou;Bowers, Barbara J.
招募少数种族/族裔进入健康研究是具有挑战性的。虽然隶属于研究人群的研究人员（被视为圈内人）可能会增加种族/少数民族的研究参与，但很少有人知道参与者将谁视为圈内人，以及他们如何回应圈内人与局外人的研究人员。本研究的目的是考察苗族老年人对内部和外部研究人员的看法，以及这些看法对他们参与研究意愿的影响。方法在一项评估使用具有文化和语言适应性的音频计算机辅助自我访谈系统（ACASI-H）的研究中，参与者提供了他们认为会鼓励社区中其他人参与研究的信息。采用ACASI-H收集30名苗族老年人的健康数据。如果研究人员是苗族人，参与者就评估参与的可能性；如果研究人员不是苗族人，参与者就回答有关参与的开放式问题。开放式问题的分析采用传统的内容分析。结果有16名（53%）受访者表示，如果研究人员是苗族人，他们可能会参与研究。14名（47%）参与者表示，如果研究人员不是苗族人，他们会参与研究。除了民族关系外，对研究者的信任可以将研究者的感知转变为内部地位，从而增加苗族成年人参与研究的意愿。通过唤起研究人员和参与者之间的联系或创造互惠关系，可以增加对研究人员的信任和向内部地位的转变。讨论结果表明，通过建立信任可以增加苗族（可能还有其他）参与者的研究参与，特别是当研究人员没有共同的民族成员资格时。这项研究还表明，对内部地位的更细微的感知，作为一个连续体，而不是一个二分法，可能更准确地反映了参与者和研究人员之间的关系。
Background Recruiting racial/ethnic minorities into health research is challenging. Although researchers affiliated with members of the study population (seen as insiders) may increase research participation of racial/ethnic minorities, little is known about who participants see as insiders and how they respond to insider versus outsider researchers.Objectives The aim of the study was to examine perceptions of Hmong older adults toward insider versus outsider researchers and the influence of these perceptions on their willingness to participate in research.Methods Participants in a study evaluating use of a culturally and linguistically adapted audio computer-assisted self-interviewing system with helper assistance (ACASI-H) provided information about what they thought would encourage others in their community to participate in research. ACASI-H was used for collection of health data with 30 Hmong older adults. Participants rated the likelihood of participation if the researcher was Hmong and answered open-ended questions about participation when the researcher was not Hmong. Conventional content analysis was used to analyze open-ended questions.Results Sixteen (53%) participants reported that they would be likely to participate in the research if the researcher was Hmong. Fourteen (47%) participants reported that they would participate in research if the researcher was not Hmong. In addition to ethnic affiliation, trust in the researcher could shift the perception of the researcher toward insider status, thereby increasing willingness of Hmong adults to participate in research. Trust in the researcher and movement toward insider status could be increased by calling out a connection between the researcher and the participant or creating reciprocity.Discussion Findings suggest that increasing research participation of Hmong (and possibly other) participants, particularly when researchers do not share ethnic membership, can be achieved by building trust. This study also suggests a more nuanced perception of insider status, as a continuum, rather than a dichotomy, may be a more accurate reflection of the relationship between participants and researchers.