Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories
Users' motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories
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DOI：
10.1007/s12687-011-0048-y
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发表时间：
2011-09-01
影响因子：
1.9
通讯作者：
Borry, Pascal
中科院分区：
文献类型：
--
作者：
Su, Yeyang;Howard, Heidi C.;Borry, Pascal
过去几年，直接面向消费者（DTC）的基因检测市场相对快速增长，引起了科学界和政策制定者越来越多的关注。然而，在这些辩论中经常缺失的一个声音是这些基因检测服务的实际用户的声音。为了更好地了解促使个人购买 DTC 全基因组测试的动机和期望，我们根据用户的个人故事进行了一项探索性研究。通过对互联网博客和 DTC 基因检测公司网站上的用户个人故事进行定性内容分析，我们确定了 DTC 全基因组检测的五组主要动机和期望。这些主题涉及（1）健康，（2）好奇心和迷恋，（3）家谱，（4）对研究的贡献，以及（5）娱乐。获得这些信息可以帮助我们了解用户如何考虑全基因组测试，并为进一步研究奠定基础。
The relatively rapid growth of the direct-toconsumer (DTC) genetic testing market in the last few years has led to increasing attention from both the scientific community and policy makers. One voice often missing in these debates, however, is that of the actual user of these genetic testing services. In order to gain a better picture of the motivations and expectations that propel individuals to purchase DTC genome-wide testing, we conducted an exploratory study based on users' personal stories. Through qualitative content analysis of users' personal stories found on Internet blogs and DTC genetic testing companies' websites, we identified five major sets of motivations and expectations towards DTC genome-wide testing. These themes are related to (1) health, (2) curiosity and fascination, (3) genealogy, (4) contributing to research, and (5) recreation. Obtaining such information can help us to understand how users consider genome-wide testing and forms the basis for further research.