Fatigue in adults with cerebral palsy in Norway compared with the general population

Fatigue in adults with cerebral palsy in Norway compared with the general population
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DOI:
10.1017/s0012162203000562
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发表时间:
2003-05-01
影响因子:
3.8
通讯作者:
Holm, I
Holm, I
中科院分区:
医学2区
文献类型:
--
作者:
Jahnsen, R;Villien, L;Holm, I

文献摘要

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在脑瘫(CP)和普通人群中,疲劳通常被报道。本研究的目的是研究与挪威普通人群相比,成年CP患者感知疲劳的患病率。向18岁或以上的CP患者发送了一份多维调查问卷,其中包括疲劳调查问卷,但其医疗记录中没有智力残疾记录。研究结果与挪威最近发表的一项关于普通人群疲劳的研究结果进行了比较。调查对象406人,其中男性209人,女性197人,平均年龄34岁,SD 11岁,年龄18 ~ 72岁。不同类型CP的分布与CR的国际流行病学研究相吻合,CP的成年人报告的身体疲劳明显多于一般人群,但精神疲劳没有增加。与疲劳相关的最强预测因子是身体疼痛、功能技能恶化、情感和身体角色功能受限以及生活满意度低。疲劳与CP类型无显著相关性,但在自我报告中度CR的人群中最为普遍。本研究结果表明,身体疲劳是CP成人患者的一个明显问题,它影响功能技能的保存和生活满意度。疲劳和与疲劳有关的因素应在CP患者的后续方案中特别加以处理。
Fatigue is commonly reported among adults with cerebral palsy (CP) and in the general population. The aim of this study was to examine the prevalence of perceived fatigue in adults with CP compared with the general Norwegian population. A multidimensional questionnaire, containing among other instruments the Fatigue Questionnaire, was sent to persons with CP aged 18 years or older with no intellectual disabilities documented in their medical records. Results were compared with recently published results of a study of fatigue in the general population in Norway. There were 406 respondents (209 males, 197 females; mean age 34 years, SD 11 years; age range 18 to 72 years). Distribution of the different types of CP coincided with international epidemiological studies on CR Adults with CP reported significantly more physical, but not more mental fatigue, than the general population. The strongest predictors associated with fatigue were bodily pain, deterioration of functional skills, limitations in emotional and physical role function, and low life satisfaction. Fatigue was not significantly associated with type of CP but was most prevalent in persons with a self-reported moderate grade of CR Results of the present study indicate that physical fatigue is a pronounced problem in adults with CP which has an impact on the preservation of functional skills and life satisfaction. Fatigue and factors related to fatigue should be addressed specifically in follow-up programmes for persons with CP.