Evaluation of an Internet support group for women with primary breast cancer
Evaluation of an Internet support group for women with primary breast cancer
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DOI：
10.1002/cncr.11174
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发表时间：
2003-03-01
期刊：
影响因子：
6.2
通讯作者：
Taylor, CB
中科院分区：
文献类型：
--
作者：
Winzelberg, AJ;Classen, C;Taylor, CB
背景资料。患有乳腺癌的女性在确诊后通常会经历心理痛苦。参加乳腺癌支持小组的妇女报告说，她们的心理痛苦和痛苦显著减少，生活质量得到改善。基于网络的乳腺癌社会支持小组得到了广泛的应用，但人们对其有效性知之甚少。初步证据表明，妇女从参与基于网络的支持小组中受益。方法：72名患有原发性乳腺癌的妇女被随机分配到一个为期12周的基于网络的社会支持小组(Bosom Buddy)。这个小组是半结构化的，由卫生保健专业人员主持，并以异步新闻组的形式提供。结果表明，基于网络的支持小组在减少原发性乳腺癌女性患者的抑郁和癌症相关创伤以及感知到的压力方面是有用的。效应大小从0.38到0.54不等。参与者从参与干预结论中感受到了各种好处和高度的满意度。这项研究表明，基于网络的计划--知己计划，在降低参与者在抑郁、感知压力和癌症相关创伤测量方面的得分方面是有效的。干预的效果规模处于中等范围。虽然基于网络的社会支持团体提供了许多优势，但这种交付机制提出了一些需要解决的伦理问题。(C)2003年美国癌症协会。
BACKGROUND. Women with breast carcinoma commonly experience psychologic distress following their diagnosis. Women who participate in breast cancer support groups have reported significant reduction in their psychologic distress and pain and improvement in the quality of their lives. Web-based breast cancer social support groups are widely used, but little is known of their effectiveness. Preliminary evidence suggests that women benefit from their participation in web-based support groups.METHODS. Seventy-two women with primary breast carcinoma were assigned randomly to a 12-week, web-based, social support group (Bosom Buddies). The group was semistructured, moderated by a health care professional, and delivered in an asynchronous newsgroup format.RESULTS. The results indicate that a web-based support group can be useful in reducing depression and cancer-related trauma, as well as perceived stress, among women with primary breast carcinoma. The effect sizes ranged from 0.38 to 0.54. Participants perceived a variety of benefits and high satisfaction from their participation in the interventionCONCLUSIONS. This study demonstrated that the web-based program, Bosom Buddies, was effective in reducing participants' scores on depression, perceived stress, and cancer-related trauma measures. The effect size of the intervention was in the moderate range. Although web-based social support groups offer many advantages, this delivery mechanism presents a number of ethical issues that need to be addressed. (C) 2003 American Cancer Society.