The Standardization of Uveitis Nomenclature (SUN) Project. Development of a clinical evidence base utilizing informatics tools and techniques.
The Standardization of Uveitis Nomenclature (SUN) Project. Development of a clinical evidence base utilizing informatics tools and techniques.
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DOI：
10.3414/me12-01-0063
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发表时间：
2013
影响因子：
1.7
通讯作者：
Standardization of Uveitis Nomenclature (SUN) Project
中科院分区：
文献类型：
--
作者：
Trusko B;Thorne J;Jabs D;Belfort R;Dick A;Gangaputra S;Nussenblatt R;Okada A;Rosenbaum J;Standardization of Uveitis Nomenclature (SUN) Project
鉴于最近对循证医学的关注日益增加，疾病和综合征必须有准确和完整的描述，包括标准化和广泛接受的术语。有必要使这些说明和术语标准化，以开发诸如计算机化数据输入表格和分类标准等工具。这种需要对于相对不常见的疾病尤其如此，例如葡萄膜炎。为葡萄膜炎领域制定一个标准化和国际公认的术语。葡萄膜炎命名标准化（SUN）工作组（WG）是一个由来自18个国家和62个临床中心的79名葡萄膜炎专家组成的国际组织。最初的术语是利用“修改后的”绿色领域方法开发的，该方法通过“修改后的”德尔菲技术通过基于网络的调查和电话会议得到增强。术语暂时映射到每个综合征的本体维度。然后，工作组开会并利用名义组技术作为最后确定映射的正式方法。结果如下：在整个工作组的会议上，对每种疾病使用名义组技术（实现超多数共识）确认了将术语映射到维度中以描述28种主要葡萄膜炎疾病。SUN工作组利用基于信息的方法为紫外线化合物制定了标准化和国际公认的术语。
Given the recent increased focus on evidence-based medicine, it is critical that diseases and syndromes have accurate and complete descriptions, including standardized and widely accepted terminologies. Standardizing these descriptions and terminologies is necessary to develop tools such as computerized data entry forms and classification criteria. This need is especially true for diseases that are relatively uncommon, such as uveitis. To develop a standardized and internationally accepted terminology for the field of uveitis. The Standardization of Uveitis Nomenclature (SUN) Working Group (WG) is an international group of 79 uveitis experts from 18 countries and 62 clinical centers. Initial terminology was developed utilizing a “modified” green field approach, which was enhanced through web-based surveys and teleconferences via a “modified” Delphi technique. Terms were mapped provisionally into ontologic dimensions for each syn-drome. The Working Group then met and utilized nominal group techniques as a formalized method of finalizing the mappings. Results: Mapping of terms into dimensions to describe 28 major uveitic diseases was confirmed using nominal group techniques (achieving super-majority consensus) for each of the diseases at a meeting of the entire WG. The SUN WG utilized an informatics-based approach to develop a standardized and internationally accepted terminology for the uveitides.