"It made me feel like I wasn't alone in the darkness": exploring dementia care network communication and coordination through a digital health platform.
"It made me feel like I wasn't alone in the darkness": exploring dementia care network communication and coordination through a digital health platform.
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“这让我感觉自己在黑暗中并不孤单”：通过数字健康平台探索痴呆症护理网络的沟通和协调。
DOI：
10.1093/jamia/ocac172
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发表时间：
2022
期刊：
影响因子：
--
通讯作者：
Werner,NicoleE
中科院分区：
文献类型：
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作者：
Linden,Anna;Jolliff,Anna;Gonzalez,Deryk;Loganathar,Priya;Elliott,Christian;Zuraw,Matthew;Werner,NicoleE
ObjectiveExploring the use of a shared communication and coordination platform-the CareVirtue journal feature-for care networks of people living with Alzheimer's disease and related dementias to inform the design of care network support technologies.材料与方法在初步研究中，护理网络包括主要照顾者和其他照顾者，他们邀请参加（例如，家庭成员，在家里的助手）使用CareVirtue，为60天，随后通过半结构化的采访，探讨主要照顾者的有用性的看法。该二次分析侧重于使用CareVirtue的共享日志功能，该功能允许护理网络通过与网络共享的帖子进行通信，网络成员可以对此做出回应。使用演绎/归纳内容分析对期刊帖子进行分析，以对信息行为进行分类。我们还进行了专题分析的采访，以确定主要照顾者的看法杂志的usefuls.ResultsCare网络使用的杂志：（1）信息采集，（2）信息共享，（3）战略发展，（4）信息反馈。专题分析表明，照顾者认为该杂志是有用的个人，护理网络，和关系水平和期刊整合的影响护理网络的结构和relationships.DiscussionCare网络使用该杂志的文件，共享和获取信息，共同创建战略，并提供支持。这个共享的沟通和协调平台的有用性，包括个人和护理网络水平的benefits.ConclusionThese研究结果点的重要性，以beverver-centered技术，支持个人的主要照顾者和护理网络。
ObjectiveTo explore the use of a shared communication and coordination platform—the CareVirtue journal feature—for care networks of people living with Alzheimer’s disease and related dementias to inform the design of care network support technologies.Materials and MethodsIn the primary study, care networks comprised the primary caregiver and other caregivers they invited to participate (eg, family members, in-home aides) used CareVirtue, for 60 days followed by a semistructured interview to explore primary caregivers’ perceptions of usefulness. This secondary analysis focused on use of the shared journal feature of CareVirtue, which allowed care networks to communicate through posts that were shared with the network and to which network members could respond. Journal posts were analyzed using a deductive/inductive content analysis to categorize information behavior. We also conducted a thematic analysis of the interviews to identify primary caregivers’ perceptions of the journal’s usefulness.ResultsCare networks used the journal for: (1) information acquisition, (2) information sharing, (3) strategy development, and (4) information feedback. Thematic analysis revealed that caregivers felt the journal was useful at the individual, care network, and relational levels and that journal integration was influenced by care network structure and relationships.DiscussionCare networks used the journal to document, share, and acquire information; co-create strategies; and provide support. The usefulness of this shared communication and coordination platform included individual and care network level benefits.ConclusionThese findings point to the importance of caregiver-centered technologies that support both the individual primary caregiver and the care network.