Understanding patients with asthma and COPD: insights from a European study

Understanding patients with asthma and COPD: insights from a European study
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DOI:
10.4104/pcrj.2011.00056
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发表时间:
2011-09-01
影响因子:
--
通讯作者:
Olivieri, Dario
Olivieri, Dario
中科院分区:
其他
文献类型:
--
作者:
Partridge, Martyn R.;Dal Negro, Roberto W.;Olivieri, Dario

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目的:了解哮喘和慢性阻塞性肺疾病患者的需求,找出改善护理的机会。方法:在5个欧洲国家对哮喘和慢性阻塞性肺病患者进行定量问卷调查。结果:1022例哮喘患者(英国190例;德国214例;法国200例;意大利222例;西班牙196例)和719例慢性阻塞性肺疾病(COPD)患者(英国153例;德国147例;法国145例;意大利140例;西班牙134例)进入研究。32%的哮喘患者和67%的COPD患者认为他们的状况对他们的生活质量有显著影响,耻辱和情绪困扰是常见的。许多人对潜在的药物副作用或药物可能随着时间的推移失去作用表示担忧。观察到患者对医患关系的满意度和期望值之间的主要差异,包括在选择吸入器时需要咨询。会诊并不频繁,75%的受访者寻求咨询期间获得的额外信息,这些信息通常来自互联网。结论:患者满意度很高,但信息需求没有得到满足,疾病的情感负担被低估。(C)2011年英国初级护理呼吸学会。版权所有。Partridge等人。初级护理响应J 2011年;20(3):315-323 http://dx.doi.org/10.4104/pcrj.2011.00056
Aims: To understand the needs of people with asthma and COPD, and to identify opportunities for improved care.Methods: Quantitative questionnaire-based survey performed in five European countries on patients with asthma and COPD. Questionnaires were administered to patients using Computer Assisted Web Interview methodology.Results: 1022 patients with asthma (UK [n=190]; Germany [n=214]; France [n=200]; Italy [n=222]; Spain [n=196]) and 719 patients with COPD (UK [n=153]; Germany [n=147]; France [n=145]; Italy [n=140]; Spain [n=134]) were enrolled in the study. 32% of those with asthma and 67% of those with COPD considered that their condition had a significant effect on their quality of life, and stigma and emotional distress was common. Many expressed concern regarding potential medication side effects or that medicines might lose their effect with time. Major discrepancies between expectations and patient satisfaction with the doctor-patient relationship were observed, including a need to be consulted in the choice of inhalers. Consultations were infrequent, and 75% of respondents sought additional information beyond that received during consultations commonly from the internet.Conclusions: Patient satisfaction was high but information needs were not addressed and the emotional burden of disease is underappreciated. (C) 2011 Primary Care Respiratory Society UK. All rights reserved. MR Partridge et al. Prim Care Respir J 2011; 20(3): 315-323 http://dx.doi.org/10.4104/pcrj.2011.00056