Preparing Families of Technology-Dependent Children for Emergencies.
Preparing Families of Technology-Dependent Children for Emergencies.
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DOI：
10.1542/hpeds.2019-0091
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发表时间：
2019-11-01
影响因子：
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通讯作者：
Morris, Marilyn C
中科院分区：
文献类型：
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作者：
Gillen, Jennifer K;Morris, Marilyn C
目的：为了描述我们的PICU收治的技术依赖儿童的家庭中的应急准备的基线水平，并确定是否以ICU为基础的规划干预可以持续改善家庭的灾难preparation.METHODS：单臂，基于调查的研究，用于评估参与者的准备处理72小时的家庭停电的基础上，一个新的8点检查表。研究中患者的父母在他们的孩子进入PICU、出院或从PICU转移时、在家至少2周后和在家至少6个月后完成了调查问题。这项研究包括50名18岁以下的儿童，他们每天需要在家中使用至少一件合格的电子医疗设备，他们的监护人是父母。调查清单的设计目标是在停电期间最大限度地提高家庭护理能力和疏散计划。根据入院评估项目完成情况提供咨询和其他资源。结果：患者家属完成项目的中位数为3个（范围：0-8; N = 50）入院时，4项（范围：1-8; n = 45），2周随访时7项（范围：3-8; n = 37），6个月随访时保留7项（范围：5-8; n = 29）。完成率显着较高，在每个后续的时间点相比，基线（P < .001）。结论：家庭的技术依赖的儿童入住我们的PICU有显着的灾难准备的需求，这可以解决与住院干预。
OBJECTIVES: To characterize the baseline level of emergency preparedness among families of technology-dependent children admitted to our PICU and to determine if an ICU-based planning intervention can sustainably improve families' disaster preparedness.METHODS: A single-arm, survey-based study used to assess participants' preparedness to handle a 72-hour home power outage on the basis of a novel 8-point checklist. Parents of patients in the study completed the survey questions when their child was admitted to the PICU, discharged, or transferred from the PICU, after at least 2 weeks at home, and after at least 6 months at home. This study included a cohort of 50 children younger than18 years old who required daily use of at least 1 piece of qualifying electronic medical equipment at home and their custodial parents. The checklist surveyed was designed with the goals of maximizing care capacity at home during a power outage and planning for evacuation. Counseling and other resources were provided on the basis of item completion at admission assessment.RESULTS: Patients' families completed a median of 3 items (range: 0-8; N = 50) at admission, 4 items (range: 1-8; n = 45) at discharge, and 7 items (range: 3-8; n = 37) at the 2-week follow-up and retained 7 items (range: 5-8; n = 29) at the 6-month follow-up. Completion rates were significantly higher at each follow-up time point compared with baseline (P < .001).CONCLUSIONS: Families of technology-dependent children admitted to our PICU have significant disaster-preparedness needs, which can be addressed with an inpatient intervention.