2021 Condon Prize: Improvising care: A theatrical exploration of Turner syndrome subjectivities

2021 Condon Prize: Improvising care: A theatrical exploration of Turner syndrome subjectivities
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2021 年康登奖:即兴护理:对特纳综合征主观性的戏剧探索

DOI:
10.1111/etho.12363
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发表时间:
2022
期刊:
影响因子:
0.6
通讯作者:
Jones, A. J.
Jones, A. J.
中科院分区:
法学4区
文献类型:
--
作者:
Jones, A. J.

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这篇文章讨论了一个民族戏剧项目,旨在探索性别和残疾的社会表演如何塑造特纳综合征患者的经历,特纳综合征是一种导致身材矮小和不孕的遗传病。与两名患有这种疾病的对话者一起工作,我们的排练展示了主观性是一种道德的、关系的和生成性的努力向善的实践,促进了自我关怀和对他人的同理心。我们的合作例证了人类学方法如何涉及脆弱性和即兴创作,鼓励我们的对话者实时调查他们与我们的自我理解。这种共同的探索经常被不确定性、矛盾和紧张所打断,这些因素塑造了自我形成的相互关系的过程,并邀请民族志学者反思和改进对研究相遇的共同期望。因此,这篇文章勾勒出一种以关怀为导向的人类学,它优先考虑可及性,承认日常生活中的创造性,并将失败作为我们的研究和对话者生活中不可分割的一部分。
This article discusses an ethnographic theater project designed to explore how social performances of gender and disability shape the experiences of those with Turner syndrome, a genetic condition causing short stature and infertility. Working alongside two interlocutors with the condition, our rehearsals demonstrate subjectivity to be an ethical, relational, and generative practice of striving for good that fosters self‐care and empathy for others. Our collaboration exemplifies how anthropological approaches that engage vulnerability and improvisation encourage our interlocutors to investigate their self‐understandings with us in real time. Such communal explorations are frequently punctuated by uncertainty, contradiction, and tension, which shape interrelational processes of self‐formation and invite the ethnographer to reflect and improve upon shared expectations for the research encounter. This article, therefore, outlines a care‐oriented anthropology that prioritizes accessibility, recognizes the creative in the everyday, and embraces failure as an inextricable part of our research and the lives of our interlocutors.care, ethics and morality, performance, subjectivity, Turner syndrome
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