Pediatric Patient and Caregiver Agreement on Perioperative Expectations and Self-Reported Outcomes.

Pediatric Patient and Caregiver Agreement on Perioperative Expectations and Self-Reported Outcomes.
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儿科患者和护理人员关于围手术期期望和自我报告结果的协议。

DOI:
10.1016/j.jss.2022.09.020
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发表时间:
2023
期刊:
The Journal of surgical research
影响因子:
--
通讯作者:
Raval,MehulV
Raval,MehulV
中科院分区:
--
文献类型:
--
作者:
Reiter,AudraJ;Sullivan,GwynethA;Hu,Andrew;Tian,Yao;Ingram,Martha-ConleyE;Balbale,SalvaN;Johnson,JulieK;Schäfer,Willemijn;Holl,JaneL;Raval,MehulV

文献摘要

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引言儿科患者和护理人员对患者报告结局(PRO)数据的观点之间的一致性取决于上下文。我们的目的是评估一系列围手术期domains.MethodsAgreement患者和护理人员之间的反应,以评估协议的围手术期domains.MethodsAgreement儿科患者和护理人员之间的反应,术前和术后的调查有关手术准备,围手术期的期望,PRO测量信息系统(PROMIS)的措施,为整体健康和疼痛,并达到里程碑收集的一部分,正在进行的临床试验,为儿童进行胃肠手术,进行了评价。Gwet的AC和斯皮尔曼的相关系数进行了计算,适当的,以评估agreement.ResultsOf 209登记的患者,65(31.1%)二人组完成了所有三项调查,并被列入。对于教育,期望和理解领域,患者和照顾者与Gwet AC1有很好的一致性,分别为0.80,0.61和0.64。对于里程碑,患者和护理人员的一致性非常好(Gwet AC1为0.95)。Milestival测量患者是否在预定时间内实现了某些目标,包括肠内摄入(Gwet AC10.91和0.92),过渡到口服止痛药(Gwet AC10.94),amestival(Gwet AC11.00)和肠功能恢复(Gwet AC10.97)。患者和护理人员对PROMIS疼痛问题的一致性为中度至高度一致(斯皮尔曼相关性:术前0.71,术后0.51)。PROMIS全球健康问题,有很强的协议(0.69术前和0.65术后)。结论小儿科患者和护理人员的协议围手术期的调查项目范围从中等到强。当一些患者水平的响应不可用时,护理人员的响应可能是可接受的。
IntroductionAlignment between pediatric patients and caregiver perspectives on patient-reported outcome (PRO) data is contingent upon context. We aimed to assess agreement between patient and caregiver responses to a series of perioperative domains.MethodsAgreement between pediatric patients and caregiver responses to preoperative and postoperative surveys about surgery preparedness, perioperative expectations, PRO Measurement Information System (PROMIS) measures for overall health and pain, and reaching milestones gathered as part of an ongoing clinical trial for children undergoing gastrointestinal surgery, was evaluated. Gwet's AC and Spearman's correlation coefficients were calculated, as appropriate, to assess agreement.ResultsOf 209 enrolled patients, 65 (31.1%) dyads completed all three surveys and were included. For the domains of education, expectations, and comprehension, patients and caregivers had good agreement with Gwet AC1with values of 0.80, 0.61, and 0.64, respectively. For milestones, patients and caregivers had very good agreement (Gwet AC1of 0.95). Milestones measured whether patients achieved certain goals within a prespecified time, including enteral intake (Gwet AC10.91 and 0.92 respectively), transition to oral pain medication (Gwet AC10.94), ambulation (Gwet AC11.00), and return of bowel function (Gwet AC10.97). There was moderate to strong agreement between patients and caregivers on PROMIS pain questions (Spearman's correlation: 0.71 preoperatively and 0.51 postoperatively). On PROMIS global health questions, there was strong agreement (0.69 preoperatively and 0.65 postoperatively).ConclusionsPediatric patient and caregiver agreement on perioperative survey items ranged from moderate to strong. Caregivers’ responses may be acceptable when some patient-level responses are not available.