Identifying patient preferences for communicating risk estimates: a descriptive pilot study.
Identifying patient preferences for communicating risk estimates: a descriptive pilot study.
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DOI：
10.1186/1472-6947-1-2
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发表时间：
2001
影响因子：
3.5
通讯作者：
Col NF
中科院分区：
文献类型：
--
作者：
Fortin JM;Hirota LK;Bond BE;O'Connor AM;Col NF
患者越来越多地寻求更积极地参与医疗保健决策，但对如何向患者传达复杂的风险信息知之甚少。本研究的目的是引出患者对复杂风险信息的呈现和框架的偏好。为了实现这一目标，进行了8次焦点小组讨论和15次一对一访谈，向妇女提供了各种不同图形格式、指标和时间范围的风险数据。风险数据是基于一个假设的妇女的冠心病，髋部骨折和乳腺癌的风险，有和没有激素替代治疗。参与者的偏好进行了评估，使用李克特量表，排名和焦点小组讨论的摘要。通过医院传单（n = 25）和社区健康博览会（n = 15）招募了40名绝经期和绝经后妇女。平均年龄为51岁，50%为非白种人，所有人都完成了高中学业。83%的参与者更喜欢条形图，而不是线形图、温度计图、100张代表性面孔和生存曲线。终身风险估计首选超过10年或20年的视野，绝对风险优于相对风险和需要treat.Although有许多不同的格式介绍和框架的风险信息，简单的条形图描绘绝对终身风险进行了评级和排名最高的整体患者偏好的格式。
Patients increasingly seek more active involvement in health care decisions, but little is known about how to communicate complex risk information to patients. The objective of this study was to elicit patient preferences for the presentation and framing of complex risk information. To accomplish this, eight focus group discussions and 15 one-on-one interviews were conducted, where women were presented with risk data in a variety of different graphical formats, metrics, and time horizons. Risk data were based on a hypothetical woman's risk for coronary heart disease, hip fracture, and breast cancer, with and without hormone replacement therapy. Participants' preferences were assessed using likert scales, ranking, and abstractions of focus group discussions. Forty peri- and postmenopausal women were recruited through hospital fliers (n = 25) and a community health fair (n = 15). Mean age was 51 years, 50% were non-Caucasian, and all had completed high school. Bar graphs were preferred by 83% of participants over line graphs, thermometer graphs, 100 representative faces, and survival curves. Lifetime risk estimates were preferred over 10 or 20-year horizons, and absolute risks were preferred over relative risks and number needed to treat. Although there are many different formats for presenting and framing risk information, simple bar charts depicting absolute lifetime risk were rated and ranked highest overall for patient preferences for format.